I was reminded today, that having one hand with no grip strength, and the other significantly weakened, i need to start hunting for something to help me! Unless any of you already know appropriate aids!
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Mum died with MND in 1979 β My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018. -
It's not the prettiest, Evelyn, and it does need a helper withworking hands, but a saline / seawater spray producesgood results for nose clearing.
A saline nebuliser will also work, but you may also need help to use it, and the decongestant rubs, sprays or meds serve a purpose too, as does the old-fashioned head over a basin of hot water, with or without a degonstant oil.
My problem then is that somebody has to wipe the stream from my nose...
Hopefully somebody knows of a solution you can manage to do by yourself.
Love Ellie.βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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i will have to google it!Mum died with MND in 1979 β My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.Comment
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I am a martyr to my nose as for about eight months I have been unable to adequately blow it. After trying practically every commercial product I have just now asked for a steroid spray. Not recommended for anyone who still has a long life span. Stay Strong π€πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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hmm - think i will be avoiding any steroids for the time being!Mum died with MND in 1979 β My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.Comment
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