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    Toto bed?

    The new care agency has suggested that Chris should get a Toto bed, it alters your position in the bed.
    Has anyone any experience of one?

    #2
    I've never used a turning mattress, only alternating air mattresses.

    Does Chris have pressure sores/potential sores which prompted the carer to suggest a ToTo mattress?

    I think an important question is, at over £2000, who will fund it...

    If he is deemed to be at high risk of developing pressure areas, he should be given an appropriate mattress - what's he on in the hospice? xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Thanks for replying Ellie. Chris has the alternate air mattress at home and sleeps on a super duper one at the hospice. He likes to sleep on his side as he has a really really bad curvature in his spine. Trouble is his hips then hurt and he needs turned.
      The care agency want two carers at night unless he gets a Toto bed, they are asking the OT's.

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        #4
        They have recommended the toto for me also. They are coming out January to see me. X
        Diagnosed May 2021 bulbar onset als.

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          #5
          Originally posted by Music man's wife View Post
          The care agency want two carers at night unless he gets a Toto bed,
          In that case, the mattress will pay for itself in about 2 weeks, makes economic sense. xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          Comment


            #6
            Originally posted by shelly21 View Post
            They have recommended the toto for me also.
            If you get one Shelly, it'd be great to hear what it's like to sleep on. xx

            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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              #7
              Lynne K
              Forum Member
              Lynne K I wonder if a Toto mattress would solve your pain issues 🤔

              You can read about it here xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              Comment


                #8
                Ellie
                Forum Member
                Ellie What’s a Toto mattress please? Xx
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                I'm staying positive and taking each day as it comes.

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                  #9
                  Ellie
                  Forum Member
                  Ellie no problem as I googled Toto mattresses xx
                  ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                  I'm staying positive and taking each day as it comes.

                  Comment


                    #10
                    Lynne K
                    Forum Member
                    Lynne K The link to the product is in my post above, you found the info anyway. xx
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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