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    Toto bed?

    The new care agency has suggested that Chris should get a Toto bed, it alters your position in the bed.
    Has anyone any experience of one?

    #2
    I've never used a turning mattress, only alternating air mattresses.

    Does Chris have pressure sores/potential sores which prompted the carer to suggest a ToTo mattress?

    I think an important question is, at over £2000, who will fund it...

    If he is deemed to be at high risk of developing pressure areas, he should be given an appropriate mattress - what's he on in the hospice? xx
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Thanks for replying Ellie. Chris has the alternate air mattress at home and sleeps on a super duper one at the hospice. He likes to sleep on his side as he has a really really bad curvature in his spine. Trouble is his hips then hurt and he needs turned.
      The care agency want two carers at night unless he gets a Toto bed, they are asking the OT's.

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        #4
        They have recommended the toto for me also. They are coming out January to see me. X
        Diagnosed May 2021 bulbar onset als.

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          #5
          Originally posted by Music man's wife View Post
          The care agency want two carers at night unless he gets a Toto bed,
          In that case, the mattress will pay for itself in about 2 weeks, makes economic sense. xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          Comment


            #6
            Originally posted by shelly21 View Post
            They have recommended the toto for me also.
            If you get one Shelly, it'd be great to hear what it's like to sleep on. xx

            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            Comment


              #7
              Lynne K I wonder if a Toto mattress would solve your pain issues 🤔

              You can read about it here xx
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              Comment


                #8
                Ellie What’s a Toto mattress please? Xx
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                I'm staying positive and taking each day as it comes.

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                  #9
                  Ellie no problem as I googled Toto mattresses xx
                  ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                  I'm staying positive and taking each day as it comes.

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                    #10
                    Lynne K The link to the product is in my post above, you found the info anyway. xx
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    Comment


                      #11
                      Hi
                      Diagnosed May 2021 bulbar onset als.

                      Comment


                        #12
                        Originally posted by shelly21 View Post
                        Hi
                        Is that a good or a bad news "Hi"? 😉🤞😘
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        Comment


                          #13
                          Lol. So the toto is in. Dont think its for me. However those who cannot move and lay on their backs I do think its good.

                          I can still get out of bed aided by grab bar and can get onto my wheelchair to visit the tiolet without waking my partner.

                          However if the toto is tilted up on the side I exit the bed I can't get out.

                          I think it would really help those carers who have to manually turn their partners etc.

                          I think I will send it back so it can be used for someone more of need for it.

                          So I will now be asking trial the air mattresses.

                          X
                          Diagnosed May 2021 bulbar onset als.

                          Comment


                            #14
                            Great to have a product review Shelly!

                            Originally posted by shelly21 View Post
                            ... However those who cannot move and lay on their backs I do think its good.
                            I could see me benefitting from a Toto if I hadn't aced out on my air mattress and I'll definitely keep it in mind.

                            Originally posted by shelly21 View Post
                            However if the toto is tilted up on the side I exit the bed I can't get out.
                            That makes total sense.

                            I can only say 🤞🤞🤞🤞🤞 for the air mattress 😘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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