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    Neck Support

    Hi all,

    Belated Happy New Year,

    Does anyone have any good neck support? My husband has tried several , but tends to find them claustrophic. He's tried the Headmaster, Sheffield and Hereford ones. It's getting tricky now - it measn it's harder for him to use the eye gaze as his neck (and eyes) get tired.

    Thanks

    Katy


    #2
    Hi Katy,

    I have a head up collar made by Talarmade:

    https://youtu.be/Z6tmADMDSgM
    https://www.talarmade.com/products/headup-collar/

    It is very comfortable and the support is customised to the shape of the neck and chin area. You can have a choice of supports at the front and also the sides if required. Because it is thin and quite discreet it almost looks like you are wearing a scarf or a snood (see the YouTube video above). You can buy them yourself but in my case the splint workshop at my local hospital sourced it for me and fitted the supports. The fabric is washable as you can get quite warm sometimes wearing it.

    take care, James


    Foxes Never Quit ๐Ÿ’™

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      #3
      Hi Katy,

      I have worn all the collars your husband has, and several more, over the years.

      I now wear an Ortel C3 Thusane rigid collar with chin support. I stressed the chin support because the collar need not be so tight around the neck as the chin support does the heavy lifting. It's not perfect - my clavicles need cushioning to protect them - but it's height adjustable and cheap enough to buy yourself at ยฃ20-25. My OT gave it to me.

      I don't wear it as tightly as in the photo - he clearly does not have head drop ๐Ÿ˜ I use eye gaze too.

      Ortel C3.jpg

      Love Ellie.

      โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      โ€‹

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        #4
        Originally posted by Lcfcno1fan View Post
        I have a head up collar made by Talarmade:
        That's the new name for the Sheffield Snood collar. xx
        โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        โ€‹

        Comment


          #5
          Originally posted by Ellie View Post

          That's the new name for the Sheffield Snood collar. xx
          Thanks Ellieโ€ฆ. Every day is a school day ๐Ÿ‘๐Ÿ˜‚

          Foxes Never Quit ๐Ÿ’™

          Comment


            #6
            Thanks, James and Ellie,
            Going to give the Ortel C3 a try... the Sheffield/ Taylormade was fine initially, but as head/neck drop became worse we found the struts started to show signs of cracking.

            Katy

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