Hi. I’ve recently been given a new bed with an air flow mattress ( to help with pressure points). I’m really struggling to use it. The pulsating ‘waves’ push me down the bed and I’m sleeping less than before. It’s also very firm and I need to sink into a mattress due to an old non Mnd related bad back. Has anyone had trouble getting used to this? Do I just need to persevere? Any advice would be very welcome!
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Hi, A hospital bed has been mentioned for me.I dread it as the only time I stayed in hospital was to get to get RIG fitted.I barely slept as the pressure relieving mattress was uncomfortable.
Also the nurses need a bed they can higher and lower and work easier from either side of the bed when I need two carers at a time.
Hope it gets sorted
Mary x
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Originally posted by Sarahw View PostThe pulsating ‘waves’ push me down the bed and I’m sleeping less than before. It’s also very firm and I need to sink into a mattress due to an old non Mnd related bad back.
May I ask which mattress you have? I wonder if it's a hybrid type, since you used the word "pulsating".
It should have adjustable firmness by either changing the weight or firmness setting. (My mattress is like sleeping on a marshmallow 👍👍)
But no, any mattress must be comfortable - its sole purpose is to give you a comfortable sleep - there's more than one air mattress so don't give up hope. xx
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Originally posted by Sarahw View PostHi. I’ve recently been given a new bed with an air flow mattress ( to help with pressure points). I’m really struggling to use it. The pulsating ‘waves’ push me down the bed and I’m sleeping less than before. It’s also very firm and I need to sink into a mattress due to an old non Mnd related bad back. Has anyone had trouble getting used to this? Do I just need to persevere? Any advice would be very welcome!Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.
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Originally posted by Sarahw View PostIt is on soft and dynamic. The other options are max inflate and ppl therapy.
3 firmness settings isn't many, especially if you're light, so definitely ring the OT.
Good luck xx
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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