Yesterday my new riser recliner chair funded by the MNDA and the Doddie Weir Foundation plus a bit from us was delivered. It is wonderful. So comfortable and I can get out of it without help or falling over. Thank you MNDA and DW Foundation.
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Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comes -
That's a win-win result 👍👍Originally posted by Hakuna View PostDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Ooh I might have to look at those. Anything to make life easier, safer and more comfortable. Glad you are pleased with it.Comment
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.Comment
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Tony
In some areas you can get a tilt-in-space Riser Recliner through your community/social services occupational therapist, so worth asking.
Hakuna I love my Riser Recliner too, so relaxing and comfortable and as you say much easier and safer to get out of.
Along with the benefits mentioned by Hakuna they also help maintain good posture; especially head, neck and shoulder position as muscle weakness makes this harder. Heads are very heavy and take a lot of muscle effort to hold them up.Started limping 2017, diagnosed August 2021. Wheelchair user and reduced shoulder and hand function. Trying to be positive 😺.Comment
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LindaB - Its a Configura by Accora Comfort 1and Lite 2 the instructions say. It was organised by my OT and she measured me for it, leg height, width etc.Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comesComment
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Of note for rise recline armchairs: a dual motor chair is best for us, rather than a single motor - the backrest and footrest can be operated independently, allowing for a change in seated weight distribution (tilt-in-space) xxDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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I appreciate my riser recliner chair more and more (thanks mnda). I find I am getting fussier by the day about what I am comfortable with sitting in, reclining to exactly the right angle and supporting my body and head, and the riser recliner recliner can be adjusted to exactly what I want. Sitting in other people’s chairs is a challenge. Yes due to neck weakness and general body weakness I suppose. XDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Stephen has one through OT. Its wonderful. When hes in daycare I bring up the foot rest and chill. It's so comfy.when i can think of something profound i will update this.Comment
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Love it Denise! That’s what I call making the most of things! XxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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I think I might benefit from a chair like this. I know this sounds daft (I feel daft saying it) but sometimes I go to bed early because I am exhausted I can't keep my head up.
Would it also possibly help with my swollen feet?Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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I would think so. Elevation of your legs would help. The mnd association supply these chairs. Normally your OT fills the form out but in your case why don't you email mnd connect. You qualify easily. They normally send a rep out for measurements to be taken etc.
Hope that helps xDiagnosed May 2021 bulbar onset als.Comment
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My OT organised and chased it. I would think it would help with your head and if you’re tired you can recline it and go to sleep. I can’t usually sleep in a chair but i can in this one. It helps my swollen feet. I was measured for it. It’s small. I am 5ft 6 so it had to have legs to higher it up. Hope that helps. Good luck. I hope you get one soon.Bulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comesComment
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TinyLady it's not daft at all, but unfortunately a feature of mnd. So exhausting to carry round a heavy head with a weak neck, I find my recliner chair a relief with that xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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I'm so glad you asked that 100%-not daft question TinyLady - reclining in an armchair come late afternoon/evening is a definite Aah moment for the neck, shoulders and upper back, so get the ball rolling on a dual motor RR chair.Originally posted by TinyLady View Post
I hesitate to say, but a collar to support your head during the day would help too - that's your OT's department 😬 (or a Physiotherapist?)
Yes, as Shelly says, elevation helps, but also passive or active movement of toe joints and ankles throughout the day helps, as does gentle massage (towards the heart) 😘😘Originally posted by TinyLady View Post
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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