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  • Lynne K
    replied
    Ellie xx

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  • Ellie
    replied
    Oh Lynne, thank you so much for brightening up my day and making me chuckle!

    Ear wax He has no excuse now and had better hear you loud & clear. If not, chase him with the wiper on the broom handle gizmo

    Love Ellie.

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  • Lynne K
    replied
    Thanks Kayleigh x

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  • Kayleigh
    replied
    Hi Lynne,

    Good to hear that you eventually got your seat riser. Hopefully your husband's hearing (and ability to be patient) will improve very soon.

    I'm ok Lynne - thanks for asking.

    Love Kayleigh x
    Last edited by Kayleigh; 13 September 2019, 14:06.

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  • Lynne K
    replied
    Hi Kayleigh, yea it did. She brought me a toilet seat riser. She ordered it several weeks ago and sent about three reminders but they hadn't sent it. So she picked it up and brought it to me herself. It is helpful.

    I'm waiting on a grant from the MNDA so that I can order mobile phone and ipad holders for my powered wheelchair. I want to explore our new home area using Google Maps on my phone. Predictable is on my ipad and I need to practice using that.

    I'm beginning to feel irritated by having to repeat myself when the first time I spoke was an effort. I don't feel irritated by strangers asking me to repeat. It's my husband who winds me up asking frequently. My daughter who I speak to often seldom does. Even stranger's seldom do. I told him to get his ears checked a couple of weeks ago. He was annoyed at that suggestion. But he booked a test eventually. It was to be yesterday. However Boots refused to do his hearing check because his ears were impacted with wax. 'Aha' I thought. This could have been easily sorted several weeks ago.

    How are you Kayleigh?

    Lynne x
    Last edited by Lynne K; 13 September 2019, 14:01.

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  • Kayleigh
    replied
    Hi Lynne,

    I hope everything went OK when your OT visited you recently.

    Love
    Kayleigh x

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  • Gillette
    replied
    Originally posted by Lynne K View Post
    Yea Natalie is my physio and Jennie my OT. They are both in the same palliative care team with our speech therapist and others. They have team meetings regularly so we only need to speak to one of them and if it is the wrong person they pass it on.

    How are you Dina?
    Lynne
    Hi Lynne,

    Thanks for asking. I'm not doing too badly, thank you. I'm likely to be in here until around 6 or 7 September as they are unlikely to be able to get a care package set up by next Thursday. I have a pre-op assessment here on Friday, then would have to be admitted on the Saturday or Sunday in readiness for my two procedures on Monday 02. Then I will be here while recovering from having two things done on the same day, plus they will be teaching me how to use the PEG.

    I'm glad I'm in here as the whole care situation was getting me down. It's giving me time and space to calm down.

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  • Lynne K
    replied
    Hi Kayleigh, I got a used hostess trolley 20 months ago approximately. It still had some grot on it. That was the first thing that I was given and I wasn't at all impressed.

    Thanks for checking rules etc. I'll ask my OT when I see her Thursday about getting a hostess trolley with brakes. They're £56 - 75 online. Some places don't offer vat exemption which may be part of the price differences.

    Currently I sit in our small kitchen on my Topro every morning for my porridge (with maple syrup on top) and cup of tea. I could take the porridge in to our living room in the bag of my walker, on top of my handbag. But a mug of tea is impossible for me to carry in. So a trolley with wheels would make my breakfasts more pleasant. Lynne

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  • Kayleigh
    replied
    Hi Lynne,

    It's interesting you mentioned the demarcation of responsibilities and I thought I'd look on the Mnda website to try and find out how this usually works with OTs and physiotherapists etc. On page 8 of the Mnda's information sheet about Equipment and Wheelchairs, it says that one of an OT's responsibilities is to advise about equipment that will help us continue with our daily routines as independently as possible (and this probably explains why the hostess trolley was provided by your OT rather than your physiotherapist).

    My thoughts are that you shouldn't have to give up your new walker, even if your OT swaps your hostess trolley for one with brakes. You have a genuine need for both - the hostess trolley will help you to keep your independence with transporting food and drinks etc from the kitchen and you need to keep your new walker to use indoors as well (eg it's probably not very appropriate for a hostess trolley to be taken into a bathroom).

    As your OT provided you with your current hostess trolley, hopefully she will agree to swapping it for one with brakes. I think It would be better if OTs always provided hostess trolleys with brakes, because they are much safer to use and are likely to meet someone's needs for much longer than a trolley without them.

    I hope you are enjoying the good weather. It makes a change from the usual rainy August bank holiday weekend!

    Love
    Kayleigh xx

    P.S Link provided below to Information Sheet '11C Equipment and Wheelchairs':-

    http://https://dbsy278t81889.cloudfront.net/app/uploads/2019/03/14095610/11C-Equipment-and-wheelchairs.pdf

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  • Lynne K
    replied
    Yea Natalie is my physio and Jennie my OT. They are both in the same palliative care team with our speech therapist and others. They have team meetings regularly so we only need to speak to one of them and if it is the wrong person they pass it on.

    How are you Dina?
    Lynne

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  • Gillette
    replied
    Lynne, is Natalie your physio? I know she and Jennie are both in the unofficial MND community team (as part of the Community Palliative Care Team). So it may well be as Terry said that it comes from the same pot.

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  • Terry
    replied
    Hi Lynne,

    I think that they both come out of the same pot unless you get something second hand. I guess that they have a computer file on your equipment.

    Love Terry

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  • Lynne K
    replied
    Thanks Kayleigh, very wise words from you as always. About a hostess trolley with brakes. I asked my OT weeks ago in an email and she's never replied. I see her Thursday next so I'll mention it and explain about the new walker. She ordered my existing hostess trolley and the physio orders walkers. There's job demarcation there, but I don't know the boundaries. Lynne x
    Last edited by Lynne K; 25 August 2019, 04:31.

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  • Kayleigh
    replied
    Hi Lynne,

    I remember you mentioning on another thread that you were hoping to get a replacement trolley with trays - but now I realise that your new walker isn't that one.

    I can see why your OT provided you with the more compact and lightweight walker but it's a shame it doesn't work as well outdoors for you as it does indoors.

    I can see the merits of having a trolley with the trays and brakes, as it will be a very practical piece of equipment to use indoors. However, I don't drive and so I don't have any experience of the dilemma you face. Also, I don't know if a trolley would be as easy to use and manoeuvre indoors as your new walker is. Even if you decide to swap your new walker for a trolley, hopefully your OT would let you try the trolley out for a while, before you had to decide which one to keep.

    Although you still have the ability to drive, it must be frustrating for you not always being able to get out and about independently. Your safety is the priority though. I worry about you lifting the walker into the car, if it puts you at risk of losing your balance and possibly falling - and so please be careful..

    Love
    Kayleigh x

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  • Lynne K
    replied
    Hi Kayleigh. The new light weight walker is supposed to be suitable indoors and outdoors. It doesn't have trays. It has a small bag with a hard plastic seat over it. The seat has to fold up either to access the bag and also to fold the walker up towards me. The wheels stay apart when it's folded as it doesn't fold handles together like the 3 wheeled or the Topro. I'm interested in getting a walker with trays instead of this one because if it's going to just be used indoors then it may as well serve two purposes then I can get rid of my hostess trolley that I haven't been using because it doesn't have brakes so runs away.

    I'd still have the problem of not being able to lift the Topro into my car. So I wouldn't have the independence of being able to go out driving alone. When my hubby is with me he almost always drives. So I'd be saying goodbye to my driving before I'm ready. I don't know what to do now Lynne

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