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    Adapted Vehicles

    Hello, my name is Rose, I am the wife of Ian who was diagnosed with ALS in July last year. At this point Ian was not far from retirement (Dec 22). We completed both aspects of PIP and were awarded the daily living allowance but they could not award the disability aspect at that time. I have since updated his circumstances and obvious changes to his ability. Again told he was not entitled to the disability aspect as he could walk a little and move about the house unaided. When I have approached them again they advised he could not apply for the disability aspect as he was over retirement age. Sorry for the long intro, my question is, are there other schemes, benefits we could look into to get Ian an adapted vehicle when the time comes he cannot walk and is in a wheelchair ? Any guidance would be gratefully received. We live is Calderdale West Yorkshire.

    #2
    Sorry I don't know if there's any other scheme of benefits but the MNDA can provide advice about eligibility fir benefits so worth giving them a call.

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      #3
      Maybe get your GP or mnd nurse to complete the ds1500 form. Then send it to PIP, it should automatically entitle you to full pip . Then you can apply for a wav with the mobility scheme.

      As you claimed pip just before the retirement age , im guessing pip with honour it 🤔 but I'm not certain.

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        #4
        Will honour it, not with ...

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          #5
          Leppy A warm welcome to the forum, Rose. xx
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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            #6
            Thankyou for taking the time to respond. I shall check out this ds 1500 form with our OT. Its quite a thing that because you re over 65 you cannot get disability allowance to assist with hiring a mobility vehicle even with such a life shortening chronic disease. Have a wonderful BH everyone xx

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              #7
              Hi Leppy, I've just posted something similar elsewhere. I was just wondering how you progressed with this?

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                #8
                Hello Kaiqu, I hope you are ok. I didnt go down the route of getting this form completed. It seemed to suggest if life expectancy was 12 month or less as advised by GP or other medical professional you may be entitled to additional benefits. We think it will be better for us to look at 2nd hand vehicles that have been modified to a spec required for MND. I am not sure where you are located but our OT gave me the name of a charity The William Merritt Disabled Living Centre in Leeds. It is a registered charity and since 1982 has offered impartial and professional advice to those living with a disability. We intend to go soon and ask what we should be searching for in terms of spec in 2nd hand cars.I am not sure if they have branches elsewhere but it would be worth a google. Good Luck

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