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  • Terry
    replied
    Yes I did see you both there Denise;

    I was so lucky to get it when I did as it's really given me some independence. It is not right for everyone but it is for me. Not the most comfortable chair and not so good on uneven stuff.

    How was your specialist.

    Love Terry

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  • Denise
    Guest replied
    Thankyou Terry.
    I was coming out just as the doctor took you in, so i couldnt say hello. I was at the desk with my husband. I have to say what a wonderful
    Power wheelchair you have!

    Leave a comment:


  • Terry
    replied
    If you can ask the hospice Denise;

    I know, for many it's a daunting place but don't look at the title, a hospice is normally about living your life as best as you can, thus making the most of it.

    You can go and see, like most things they don't force you. They are normally used to dealing with us and offer another set of OT's, Physio's, etc.

    You could also ask your doctors as they might have some ideas. Mnda connect could also probably get someone around to help you.

    Remember, when filling in any forms to put your worse day down and not your advantage one.

    Missed you yesterday but I do understand.

    Love Terry

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  • mags55
    Guest replied
    Anyone, my sister filled my one in for me as I have a bit of a problem writing now, I just had all the information to give her,
    Where did u say u are going Denise? We fly to Rome on Tuesday for 2 days and then on the med cruise for 9

    Mags x

    Leave a comment:


  • Denise
    Guest replied
    We are going away nxt week so will sort it once we are back. Maybe ill call them as im not sure i could fill the form in as my right hand is very weak, who do you think could help me fill it in?

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  • mags55
    Guest replied
    I had a huge 30 or 40 page form to fill out, took me and my sister 2 hours, but got it! backdated too.
    Mags
    X

    Leave a comment:


  • Jan
    replied
    I did all of mine over the phone, no filling in of forms and the Hospice posted them by DS1500

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  • Denise
    Guest replied
    Can you feel the pip form in on line or do they have to send you a form.

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  • Guest
    Guest replied
    received pip within about 3 weeks. GP was great and did the ds1500. sep 2015. I wouldn't have known to ask for it if it was nt for people talking on here. so a big thank you x

    Leave a comment:


  • Dude
    Guest replied
    Me too but no harm in letting them hear what they want to hear. Dude

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  • cadbury59
    replied
    Hi Dude
    Can't do it I'm afraid (stubourn and pig headed ) I just think anyone diagnosed with MND should be entitled to all the help going , but thank you for the advice

    Leave a comment:


  • Dude
    Guest replied
    Hi Cadbury (Cad doesn't work). I bet you're not sleeping well and are down a lot,maybe get GP to prescribe anti-depressant and sleepers. Get all the ducks in a row. To be fair to assessors they will put down what they see and hear. They are working to guidelines. Dude

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  • Dude
    Guest replied
    Hi Cad Unfortunately you need to swing the lead a bit. Exaggerate your condition like how many times you've fallen over. A bit of sadness and depression is always good. Read all this thread , Jock gives some good advice, as always , about not being able to walk 20 yards unaided, Maybe ask OT for a rolllator to 'show' progression of illness. Good luck. Dude

    Leave a comment:


  • Barry52
    replied
    Hi Cadbury,

    You can challenge their refusal but as Terry said get someone to help with the form. My local hospice did mine.

    It annoys me that some bureaucrat sits in an office, having absolutely no idea of how MND affects us and simply adds up points from a questionaire to determine qualification for a benefit we are all entitled to grrrrrrrrrrrr.

    Leave a comment:


  • cadbury59
    replied
    Thanks Terry
    I have emailed my MND coordinator for help .... Fingers crossed

    Leave a comment:

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