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  • #31
    Originally posted by Clive View Post
    Hi Jock
    I hope you do not need this when you visit the Neurologist.
    If you do phone the PIP afterwards, it will be backdated to the phone call. The Neurologist should fill in the DS1500 and send it in. No more forms.
    Best wishes
    Clive
    Cheers Clive - just to clarify....if the Neurologist does fill in the DS1500 does that mean I can disregard the paperwork being sent to me now? (we were told it can be expected within two weeks!).

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    • #32
      Jock
      No need to fill in the paperwork, check you ring the right number and answer the questions for fast track DS1500, worth checking the website before.
      Best wishes
      Clive

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      • #33
        Cheers Clive. I'd report back with any news that may interest others.

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        • #34
          Hi

          Hello peoples,
          Thanks for all this insight you have each placed into this thread. I will ask for the ds1500 from our neuro specialist. Our GP wanted £5 to write a letter for the blue badge, I said no and sent a copy of the neurologists summary.
          I am still waiting for blue badge assessment after 6 weeks so probably still have a few weeks to wait for that if the PIP's are taking nearly a year to sort out. When I sent the blue badge form off hubby could walk a lot better than he can now, I will have to phone them and ask them to update the details. Same with the pip in a few weeks I expect.

          I think that once someone has a confirmed diagnosis there should be a different process that sorts all this out, all at once in the background. I find it hard to put into words let alone onto a form that my husband is the shadow of my husband, that he can no longer do lots of things and each day another bit of him gets chipped off. I scour the forums looking for someone who has or has had his symptoms and no two people are the same as far as I can tell. So how am I supposed to guess for a form what he might be by the time they get around to processing the form?
          I have spent hours on the phone chasing things up,filling out forms, photocopying docs, having to take it to the post office to get things weighed so I have the right postage and have not actually managed to move one step forward. It's sad to think everyone on this forum has to fight for what they are supposed to get, it's all hard enough.
          Grump over with and I will get that DS form next.
          Thanks
          Sylv

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          • #35
            Hi Sylvia ,
            So many things in your post ring true to our own experience trying to get anything now is just soul destroying ,there is no valid reason why it takes over six weeks to get the blue badge, it's just lousy attitudes in offices to do their jobs with a bit of haste, very much the same trying to get anything organised really you just hit the same brick wall , any Terminal condition dictates you are eligible for the DS 1500 form as to if you comply with the magic 6 months is irrelevant really as your not going to get any better you would think the genius behind these so called rules would find it in their remit to hurry things along , as it just may save the applicant a bit of stress they can well do without on top of everything else. My own pet hate is ,,you realise this is means tested don't you ???, what moron thought this up , I get a minute company pension and yes I get DLA, but have no longer any savings after being forced to move because they would not help with ramps ,so we spent all my money saved on a move to a bungalow, now it seems because my wife inherited her parents home after her father passed away ,the sale went though to find he had taken out one of those cash things on it ,so he borrowed £8 k and a year later the company took 34k from the sale price ,this was to be her income after I shuffle off, now it seems her money is taken into consideration as well, just seems so damn unfair that she is being penalised for my situation , my rant over for now ,going to sit in a cold bath to cool down , Good luck with your situation sorry but you have to be ruthless to get anywhere.

            Pete

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            • #36
              My GP said today he is happy to fill in a DS1500 for me.

              I'd see the Neurologist first to ensure I have MND.

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              • #37
                Well said Night Walker

                I so agree, the questions these forms ask are really difficult to answer with your loved one there. We are living with this day to day and to help us do that we have to look on the bright side. The questions asked just bring everything to the fore. When we filled in the blue badge form we eventually showed it to our specialist nurse and she filled it in with a covering letter, we had the badge within the week, still find it weird to use it though.
                Like you say, we filled in the PIP form in February, have to go for an assessment soon, but symptoms have worsened a lot since then. I was a bit upset that he had to go for an assessment at all but I persuaded myself that it's probably best because he has got so much worse.
                Keep your chin up, it's very tiring, I had a bit of a wobble last week (mostly) caused by officialdom, at one time we would have shared these things, more difficult now.
                Thinking of you.

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                • #38
                  After getting a DS1500 from GP DWP have sent me a PIP2 Form some 34 pages long.

                  I am wondering if this might be to establish the level Mobility component? It is my understanding that the Daily Living Component is automatically set to 'enhanced' for terminally ill.

                  I thought those of us with DS1500 had no forms to fill in, but I was left wondering how they established the Mobility rate (some £200 difference per month) going purely by a DS1500? PIP2 might be how they do it?

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                  • #39
                    Hi Jock
                    When I did mine, an extra phone call was sufficient, look it up on the PIP website, they will ask you one question, it is on the website, how far can you walk? no need to fill in extra forms.

                    Good luck

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                    • #40
                      I appreciate you replying Clive. When we rang this afternoon about having been sent the form we weren't offered any questions - simply told that the person working on my case wanted the form filled in.

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                      • #41
                        We were lucky to have the assistance of our local hospice benefit worker help us submit the DS1500, and to their credit DWP sorted our claim within a week - I understand this isn't the experience of too many people in our situation.

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                        • #42
                          Hi Jock
                          Hope you have sorted out PIP, if not look up PIP special rules, there is a PIP handbook on the net, special rules on page 32, all info is there.
                          Good Luck
                          Clive

                          Comment


                          • #43
                            Below is a link to what Clive kindly refers to....The very first bulleted line states though "(you) will not have to complete the 'How your disability affects you’ form" and that is exactly what PIP2 is about. We got nowhere on the phone on this matter - we were simply told to fill it in.

                            https://www.gov.uk/government/upload...P-handbook.pdf

                            I'm thinking though that the matter is linked to determining the level of Mobility component to pay. There is a £200 monthly difference in the two levels of mobility payments - how do they determine which you get? The Living component should be sorted by the DS-1500. The rules state you should automatically get the enhanced rate on that one. Straightforward. As for Mobility this quote implies it is to be determined "Both the daily living component and, providing the conditions are met, the mobility component will be paid straight away."

                            I would feel better if they had said on the phone that they needed the info to decide the Mobility Component rather than be simply told to fill it in.

                            Comment


                            • #44
                              My first Pip payment reached the bank today. The Award was back-dated to 14th July 2014. I might well have seen money sooner if one or two mix ups had not occurred. It has to be said the mix ups were not Pip's fault.

                              I got enhanced status on both Living and Mobility. The latter was awarded as 1) I cannot undertake a journey alone 2) I cannot walk 20 yards unaided.

                              Interestingly the Award expires in 2017 and I will have to re-apply (if alive! ).

                              I applied under Special Rules using a DS-1500. All that related advice came from this forum, so I am most grateful to all!

                              Comment


                              • #45
                                Hi, I have just had some good news regarding my Personal Independence Payment (PIP) claim which has been approved for daily living component at the enhanced rate and the Mobility component PIP at the enhanced rate. They have backdated it to March which is also good news. I did not think I would be entitled to any benefits as I am still getting paid sick pay from my employer but as a doctor explained to me its not about if you are working or not you have to be below the age of 64 I think he said. This has now opened the door for my wife to be able to apply for a carers allowance and we will have to wait and see what the result is. They have also said I can get free car tax. So any one out there below the age of 64 go on line and submit your claim or give them a call.

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