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    #31
    Right that Terry can be very persuasive! Lol! Not expecting donations but would love you lovely people to see the crowdfunding page my son has created. I'm so proud of him xx
    https://www.justgiving.com/crowdfunding/eleanorkirlew

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      #32
      Well done to your son!

      Pink do you know if 'Just Giving' converts US dollars over to your currency ? I looked at the donate page it was all in pounds.

      CCxox

      Comment


        #33
        I'm not sure cc, I would presume it did x

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          #34
          It's not quite the amount that you need yet, Pink,

          But he has done well.

          Love Terry
          TB once said that "The forum is still the best source for friendship and information."

          It will only remain so if new people post and keep us updated on things that work or don't work and tips.

          Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

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            #35
            He has Terry. Also last week a couple of colleagues put on a fundraiser for me as a surprise. One of them has a band and he wanted to give them an airing as they hadn't played in a while so they turned it into a fundraiser for me Raised £573!! So with the race night my other colleague did for me and other monies coming in I've got nearly £4000!!

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              #36
              !!! Xxx just realised who's donated on my sons just giving page! Thank you so much cc and Terry xx

              Comment


                #37
                Hi Pink;

                I told you that I was tight, every little bit helps.

                Love Terry
                TB once said that "The forum is still the best source for friendship and information."

                It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                Comment


                  #38
                  Exactly Terry, but seriously didn't expect anything to be honest as we are all in the same boat!! But thank you so much Xx

                  Comment


                    #39
                    If that was you again terry or cc.... Thankyou very much x

                    Comment


                      #40
                      No didn't qualify either just got told I could contribute £140,000.00 ( I wish) and also told no further funding available for major adaptations from my council!!!!

                      Comment


                        #41
                        Hi dkjc;

                        Sorry to hear that don't qualify for a grant and other help that is free to some others.

                        It doesn't mean you can't get any equipment or small job under £1,000.

                        Love Terry
                        TB once said that "The forum is still the best source for friendship and information."

                        It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                        Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                        Comment


                          #42
                          Hi Terry

                          Thank you, yes I have contacted my OT regarding shower chair, grab rails, and hopefully a bio bidet toilet and possibly ceiling hoist if they all come under £1,000.00

                          Comment


                            #43
                            Hi dkjc,

                            It's worth seeing if the MNDA will give you a grant - Every Little Helps as the saying goes...

                            Love Ellie.
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

                            Comment


                              #44
                              Hi Ellie,

                              Thank you already on it

                              Love Darren

                              Comment


                                #45
                                Hi dkjc,

                                Do you need everything soon?

                                As others have posted, hoists etc should be provided free separately but it's worth checking out.

                                Make sure you have been referred to the wheelchair services as their waiting list is long.

                                Love Terry
                                TB once said that "The forum is still the best source for friendship and information."

                                It will only remain so if new people post and keep us updated on things that work or don't work and tips.

                                Please post on old threads that are of use so that others see them and feel free to start new subjects and threads.

                                Comment

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