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Experiences of applying for welfare benefits

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    Experiences of applying for welfare benefits

    If you are living with MND, or know someone who is, and has experience of applying for welfare benefits, we need to hear from you!

    Please share your story at https://bit.ly/benefitsexperience

    Benefits can help those struggling to cope with the financial costs of living with MND. However the benefits system is too complex and often too slow to respond. We are concerned that the Covid-19 pandemic is likely to have a financial impact on many people with MND and their families, making it even more difficult to make ends meet. Therefore, it is vital that urgent action is taken to make sure the benefits system can respond quickly and sensitively to all people with MND and other terminal illnesses.

    Please share your experience of applying for benefits and help us campaign to ensure the Government improves the benefits system for people with MND and other terminal illnesses.
    Our working hours are Monday to Friday 8:30am until 5pm

    #2
    Hi

    My husband (with MND) and I will start applying for benefits with the MND nurse on Friday 14th August, PIP and housing benefit etc. We privately rent so want to move to more accessable housing (read the housing summary) Is there a particular area other than time that the association is interested in?

    Thanks

    Donna

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      #3
      Hi

      My husband was diagnosed in Oct 2017. I applied for attendance allowance straight away and were granted the higher rate due to my husband having to use NIV breathing machine at night. We have a fab Occupational therapist who arranged for a stairlift for us. We also got some money towards a shower enclosure from the mnd via our Occupational therapist. We feel well supported.

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        #4
        Hi Piglet

        Thanks for your information.

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