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Continuing Health Care (CHC): anyone have any feedack?

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    Jobowray
    Forum Member

  • Jobowray
    replied
    Hi my husband has been approved for chc and we have a pa starting tomorrow. We found the process to be quick and they offered us full time care including nights and weekends. We have refused this as i do most of the care and it's only because I still work. We want to protect weekends and nights as long as possible due to having young children. The funding we had before came from social care but we had to pay quite a lot towards this which was difficult now that we are down to one wage. We found that the chc team who did the assesment to be very supportive and just wanted to support my husband myself and our children. They even allowed us enough money to be able to have extra hours to be used to suit us so I will be able to on the odd occasion take the girls out and know that my husband is cared for. So having chc funding ,has so far been a really positive experience.

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  • Guest
    Guest

  • Dude
    Guest replied
    Hi Pebbles CHC is a minefield. Have you got a social worker, if not get one. Mine is like a defence lawyer. Have a heart to heart talk. Who lives with Dad ?. Dude

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  • Guest
    Guest

  • Candle
    Guest replied
    I don't think CHC is about how bad someone is per se. It is funded by the NHS so should include some care, presumably the majority, that can only be provided by a registered nurse. Hoisting, feeding, etc can be carried out by a competent person but they don't have to be registered nurses. Social Services provide this type of care out of their budget and are allowed to means test whereas the NHS cannot. I think the only luck mum had was that after months in hospital they were so keen to free up a bed CHC was rushed through and granted. I wouldn't say she was very different to some of the examples I've read on this forum who have been refused CHC.

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  • Guest
    Guest

  • Pebbles
    Guest replied
    My father is confined to a wheelchair,hoisted in and out and has to be fed,at the moment,as he was able to stand for a few seconds in a standing hoist got marked as C, maintains a positive attitude C,
    Not sure how bad you have to be to get Continuing Funding but have heard 3% of people need CF of those only 3% get it.
    As things go it looks like he will only get it after repeated assessments.
    But got to keep trying

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  • Guest
    Guest

  • willsandco
    Guest replied
    Sounds good to me, John. We are paying around 250 pounds for 6 x 3/4 hours carer slots per week. I am all for free care! But it ain't gonna happen, is it? Love. Joycie x

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  • John14
    Forum Member

  • John14
    replied
    Hello,

    For me this is an interesting thread, at the moment I am able to manage without a carer, my wife does a lot for me as even my daily job of emptying the dishwasher can take an hour. I can wash and dress myself and eat normally, since my diagnosis in March I seem to have put on a couple of stone, I am 6'3" and really need to address that as it makes it more difficult for me to get around and when I need carers I may present a considerable challenge. Having said that my MND/ALS has impacted upon my life to a pretty great degree and there will come a time I know when I am going to need a lot of help. I have been following the Labour leadership campaign and Jeremy Corbyn said that we are all just one accident away from total dependancy and that as we get older we get sick and need to be cared for, he advocates free care for all according to need which rings a bell with me.

    All the best,

    John x

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  • Guest
    Guest

  • Steve
    Guest replied
    that's why social workers will push, it frees up their funding.

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  • FlyingSoupDragon
    Forum Member

  • FlyingSoupDragon
    replied
    Thanks guys, being under the aegis of the NHS you would think that policy would be fairly consistant. From my home visit with my local council social worker (impressively helpful chap) it seems county council social care funding works closely with the NHS in that should CHC be granted it replaces existing council awarded funds. CHC being seen as having greater latitude and funding powers.

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  • Guest
    Guest

  • Steve
    Guest replied
    We also found with MND you are often an A or a C, it's not a perfect system. Then again, it's designed for a very broad spectrum of diseases.

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  • Guest
    Guest

  • Steve
    Guest replied
    I went through it and was awarded part funding. I am totally PEG fed, have little movement, hoisted and wheeled everywhere etc. and have no way of communicating when away from a screen. It makes little difference to me as I qualify for free social care.

    I believe our social worker is challenging it, again I'm not too bothered which pot it comes out of.

    The decision took 2 months from the form going in.

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  • Guest
    Guest

  • willsandco
    Guest replied
    Thanks so much Norman.

    The checklist has been very instructive. We know what we are dealing with now!

    Hope you have a successful outcome.

    Love. Joycie

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  • FlyingSoupDragon
    Forum Member

  • FlyingSoupDragon
    replied
    Originally posted by willsandco View Post
    Hello Norman. Let us know how you get on with decision. We are funding all our care at the moment. But we have no nursing care. I am not quite sure where parameters change. Joycie
    Hi Joycie,

    CHC is comparatively new and as I understand it, not means tested.

    There is a checklist which provides guidance on eligibility etc.

    We had a consult and the application's been completed and submitted, as soon as I see a result I'll report back here.
    FlyingSoupDragon
    Forum Member
    Last edited by FlyingSoupDragon; 8 September 2015, 12:52.

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  • Guest
    Guest

  • willsandco
    Guest replied
    Hello Norman. Let us know how you get on with decision. We are funding all our care at the moment. But we have no nursing care. I am not quite sure where parameters change. Joycie

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  • FlyingSoupDragon
    Forum Member

  • Continuing Health Care (CHC): anyone have any feedack?

    I'm in the system and awaiting results of the consultation. It seems to be an enlightened and effective system, but it took a knock in the press recently. Any end-user advice or feedback on this NHS system gratefully received.
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