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  • Guest's Avatar
    Guest replied
    Hi Clive,

    Thank you, yes it was a serious amount of stress lately but i got there in the end,

    Now i have got more support than i thought i would get, i am so much more relaxed now

    My consultant signed the DS1500 and that was that, now all i have to do is wait a couple of weeks for payments and back dated payments to arrive.

    I am going to treat myself to a new computer as to cater for most of my needs in the near future and then the rest is going to go on my little boys.

    They both have birthdays this month and next month and Christmas

    I am going to give them the best birthdays ever and a Christmas they will never forget

    John

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  • Guest's Avatar
    Guest replied
    Originally posted by Barefoot John View Post
    At last , i will be getting DLA and a huge back dated payment any second now,

    I know what allowance im getting which is very cool.
    Brilliant news John. So glad you got it sorted at last. I know it has been a mega stress, been there, done that and got the tee shirt.

    Clive

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  • Guest's Avatar
    Guest replied
    Great news John, we are very pleased for you

    OMG did you really mean £4000 computer?

    if i paid that much for a computer i want it to make my dinner and bed for me, i'm guessing the environmental control is that programme you were talking about that can control all in your home?

    I seen that programme and its so good that you can open doors/windows open/close curtains, turn lights on/off

    I know that you live alone with those lovely boys of yours and it will help you so much when you find it hard to do things yourself

    Great to have a good friend that owns his own computer business and will build the ultimate computer for you and at half price!
    wish i had friends like yours

    Well done getting your DLA sorted out, its been a very long time getting it.

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  • Guest's Avatar
    Guest replied
    At last , i will be getting DLA and a huge back dated payment any second now,

    I know what allowance im getting which is very cool.

    Even get a "freedom pass" which is our electronic swipe cards we use, free travel on buses, trains and my favorite underground trains (tube)

    So all is looking very good and just in time for christmas

    Will be out to BUY my own pc at the most high specs possible for the couple of grand i will pay for it from my friend who builds custom made pc's plus he said as he known me for years, that everything i want is half price,

    wow 4k of desktop will do me very nicely, dont think i will ever need a pc again in my time and at least this is my own plus i get the environmental control programme installed for free
    Last edited by Barefoot John; 21 October 2011, 15:18.

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  • Guest's Avatar
    Guest replied
    I hope to receive DLA soon as i just submitted the lengthy forms.

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  • Guest's Avatar
    Guest replied
    Hi john,i don't think you need to appologise on this forum, it does u good to have a good rant plus everyone on here should understand we all have off days happy ranting john xellex

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  • Guest's Avatar
    Guest replied
    Hi computatec, sorry its just been one of those days as we all get, yes i will get the c.a.b to help me with this as i seam to be going around in circles over it all, but hey thank you to all of you with all the messages and support that you have all given me.

    Best regards.

    John.

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  • Guest's Avatar
    Guest replied
    With respect John, stop stressing over this and just do what we told you. Get the trained people like Citizens Advice or Age Concern to sort it out for you. They can handle the DS1500 as well.

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  • Guest's Avatar
    Guest replied
    Ok, it looks to me that the DLA dont give any kind of payment to recently diagnosed people with MND, as again they have sent back their decision stating that " I DO NOT FIT ANY OF THEIR CRITERIA " lol so now i been told to get a DS1500 from either my joke of a very un-knowledgeable to MND of an excuse called my GP or my specialist but as its for people with 6 months to live, he wont sign the form ffs what do i have to do to get some kind of payment?

    If i was claiming under the mental health then i would be guaranteed payments, lol the way things are going and with all these wasted phone calls and form filling, maybe i might have to claim as mental health as its all a total waste of time and effort and its driving me crazy

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  • Guest's Avatar
    Guest replied
    Originally posted by John Charen View Post
    Hi, i have MND and filled in the DLA form, it took them 7 weeks to decide that i was not eligible for any kind of payments, Can anyone tell me where im going wrong?
    Hi John, this is a very common occurance and is due to the fact that we don't know the criteria we have to satisfy to be awarded a payment so we don't use the correct form of words. I got Age Concern to fill in my forms and I actually got payment back dated to the date I first applied. Age Concern and the Citizens Advice Bureau have specially trained staff to help you and they know exactly how to fill in the form to get what you are entitled to.

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  • miranda
    replied
    John, it may be worth contacting your local MNDA branch for advice about putting in a bid for funding of your phone. Branch funds are there to help with the provision of items such as this.

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  • Guest's Avatar
    Guest replied
    Thank you Elle for your support, yes this disease is not known by many when i tell others but im going to do my bit by public canvassing etc. to allow more of the public to be more aware of MND,

    I really do hope that i get some financial help for my kids and myself but many so that while still can, i want to take my kids to so many kids places theme parks etc. so to give them so many good memories etc. plus also get a few things to make my own life more comfortable etc.

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  • Guest's Avatar
    Guest replied
    Hi barefoot-john,so sorry you feel totally alone and scared i think most of us do it goes back to saying were all frightened of the unknown,more so for anyone bringing up children on there own, as for DLA try not to worry too much as i did but like you i appealed and won as i'm sure you will it's just so frustrating having to justify this horrible cruel disease, good luck they will backdate when you WIN xellex

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  • Guest's Avatar
    Guest replied
    Hi guys, thanks for your help, yes i was told about the DS1500 for and also told thats its for 6 months or less to live, i hope but think i have much more time than that lol, i am under kings college London where i see the professor there who diagnosed me so if im quick and he can help then maybe i should get some kind of payment that's if im entitled for some kind?. I am really looking forward to the meeting down here in London next Sunday as i feel totally alone and to be truthful very scared as i have 2 small sons that i care for on my own, not so much scared for myself but for y little boys, i don't have family and choose to have a very small amount of friends, its got that bad now, that i now need to get a touch screen phone as my thumbs don't work any more and cant text , being on benefits, its going to take a long time to save to but the phone i need as all my money goes on my kids and home, so yes DLA would really help me out so much.

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  • Guest's Avatar
    Guest replied
    find out when your next local MNDA branch meeting is, someone there will be able to help and speed things up with the DWP. if its not for a while find out a contact name / number. Im with the South Yorkshire branch and they are excellent at sorting out your DLA.

    Leave a comment:

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