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Life Insurance with possible MND

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    Life Insurance with possible MND

    Hi, apologies in advance as not sure if I should be writing on here but here goes. Again another person who thinks they may have MND - symptoms: muscle twitching in all limbs, unexplained pains/discomfort in left arm which now affecting left shoulder, slight stiffness in left wrist and both hands can be painful when doing daily activities (comes and go). Have managed to get a referral to a neurologist, but through research I have assumed MND. Started to look for life insurance and have been advised this will be near impossible to find but need an actual diagnosis (which from what I have read can take upto 12 -18 months depending on symptoms and speed of progression). Can anyone recommend any insurance companies they may have used, please?

    #2
    SteveD
    Forum Member
    SteveD Way jumping the gun here Steve. You know what is said about the word assume ...

    Personally, I don't think your symptom "research" was thorough enough, so hopefully the Neurologist can soon provide you with answers as to what is going on with you.

    Love Ellie.
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

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      #3
      Hi Ellie, you may be right - I have kept my assumptions to myself from the people I know because they would probably support you.
      I have read-up on some people's personal stories about their diagnosis and the subsequent living with MND which i have found very moving and I obviously don't want to belittle the experiences people have gone through by sounding like a hypochondriac.
      Maybe it is just coincidence the stories i have read, but for 50% of these their first symptom was muscle twitching - which maybe didn't do me any favours! And also these people exercised quite intensely prior to symptom on-set and diagnosis - I myself have a history of high intensity exercise as well.
      And their doesn't appear be many conditions which can start with muscle twitching, with MND and Benign Fasciculation Syndrome the two main ones.
      Whatever the outcome holds, I would like to thank I do now have some knowledge of MND and have also just started to raise money by taking part in the 7 x 7 challenge inspired by a Rob Burrows to help fight this disease.
      Sorry, have started to rant now! Maybe I'm planning for the worst but I like to be prepared and if I have bad news coming i would rather know so I can start to deal with it and make plans - sorry, another rant starting.
      Take care

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        #4
        Hi Steve D, it’s hard when you awaiting neurology appointment as the mind goes into “What if” mode.Hope you get an early neurology appointment which covid restrictions going on.That usually starts various tests like nerve conduction tests before a diagnosis is made.
        The waiting is anxiety provoking.Ellie is right ..you really need to wait and see the outcome.
        I ended up having to pay for a neurology face to face appointment as many weren’t doing face to face in these covid times .Seemed to change when I went private though!!,
        Best wishes
        Mary

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          #5
          Hi Mary, thanks for your message. I have a telephone consultation with a Neurologist in mid-April but know it could be at least summer before I have a face to face with anyone.
          Hope you are ok/well at the moment.
          Best wishes
          Steve

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