Pip
Just started the filling in the PIP form. Any tips and advice gratefully received. π
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
Best get your specialist nurse at your clinic to oversee somebody in the team, like a social worker to fill the form in for you. Thatβs horrid I got the higher rate of PIP straight away. Good luck, Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes. -
Fully agree with Lynne. Your specialist nurse can probably ensure your application is fast tracked, and this means you wonβt have to fill in any forms at all. However, if thatβs not possible, Iβd strongly suggest you ask Citizens Advice or the MNDA for help to complete the form. I was a Citizens Advice volunteer adviser until MND happened to me. The form is long and complicated (Iβve helped with completing many), and there are ways to to do itβ¦ and ways to not do it!Diagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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PeterPan thanks Peter didn't know I had a specialist nurse so that's something else I need to look into
Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Lynne K thanks Lynne you've mentioned specialist nurse too. Did you fill in a DS1500 form to speed up the process?
πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Just to butt in⦠the DS1500 form can only be completed by a specialist nurse, consultant or a doctor. Well worth exploring though because it would make your application so much easier.Diagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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PeterPan thanks will look into that and discuss with GPπInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Hello Linda
not all health areas have a specialist nurse, and you only 4 weeks to complete it,
If you have to do it on your own, there are quite a few articles how to complete PiP on the internet and examples of how to answer, different charity sites are a good source.
Take your time and get your partner or close friend to check , they may of think of something else you canβt do, remember to fill it as when you are at your worse,
a good hint is to start the answer with :
because of mnd β¦β¦
the answer boxes are very small, you can type your answers onto separate pages, I canβt hold a pen and so wrote, in spider writing, due to mnd I am unable to complete all answers by writing , please see attached pages.
this gives you more room to explain your problems
some of the questions are worded in a way that you think you can do e.g. washing and bathing ,so expand I included cleaning teeth, oral hygiene, and shaving - donβt just think about the worded question- expand on it,
dressing : shoe laces, buckles count as below the waist
also consider risk of injury , dropping knives, hot kettles, baking trays these are dangerous , eg due to problems with gripping I cannot securely hold a sauce pan without risk of if falling/spilling. Due to dexterity problems I cannot use a knife and fork and have to adaptive cutlery
On the question about your condition, expand donβt just put MND. β¦..I have ALS (written in full) which effects muscle control in my hands. legs and shoulders ALS is progressive Chronic illness there is no cure i I will only worse, (lay it on thick)
Send copies of any reports which are relevant, including things like physio exercise plans, the more official paperwork you can supply the better
I didnβt have help , did it in full lockdown, there wasnβt anyone to help, but got full allowance on first submission,
Dont expect a quick answer though it took them 4 months but payment is back paid
good luck
s
As long as thereβs golf and beer Iβm happyComment
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Linda
the DS1500 , is for life expectancy of 6 months, you will need a compassionate GP or consultant and your claim will be fast tracked
s.As long as thereβs golf and beer Iβm happyComment
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Hi Linda
My neurologist was happy to give me a DS1500.I then rang PIP / benefits help line.I explained I have MND and also a DS 1500.I had to only answer very few question over the phone and sent a copy of DS 1500 and got the highest rate very quickly.
This was fortunate as then I was able to get on motability scheme just before I was 66 and about to get State pension.If it has been awarded a few months later and I was in receipt of state pension I would not have been eligible for PIP and motability.
Hope you get it sorted
Best wishes
MaryComment
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Shaun thanks for such a detailed reply that's so helpful as I realise I'm not saying enough so will use your tipsπ I'm filling it in online so typing all of it.
cheersπΊLast edited by LindaB; 14 June 2021, 22:13.Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Mary C thanks for the info interesting about the DS1500 form and your experience. I've got 4 weeks so will ask my GP and take it from there πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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LindaB if your GP wonβt issue a DS1500 ask your consultant. My local hospice completed my PIP for me and that was 9 years ago. I have renewed it twice and when I mentioned MND is progressive the DWP accepted my claim.Iβm going to do this even if it kills me!Comment
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LindaB People think I am an intelligent person. At the suggestion of my consultant I applied for PIP and was turned dow. I appealed and was rejected. My consultant then sent in a DS1500 and I got it immediately.
RichardRichardComment
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The Specialist Nurse at Salford passed my PIP form to the Social Worker and he filled it in and got my DS1500 signed by my neurologist. It probably hurried it and got me the higher rate. But I donβt know for sure if it would have been a similar speed getting done without it. Lynne xOriginally posted by LindaB View PostLast edited by Lynne K; 15 June 2021, 08:26.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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