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Has my house got to be adapted

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    Has my house got to be adapted

    Hi I'm newly diagnosed but my limbs are failing arms ar moment started wth speech..we've only been in our house 2 years have big mortgage new one ans we love it here and dont want to move it is a 3 bed semi detached we have good neighbours and youngest lives nearby...from what I've read most people when a lot of their limbs r fail seem to have to have extensions on house and have to make big alterations we have a kitchen and one small lounge. We wont have the money or space to alter our property I may be thinking far ahead but it helps my mental health living her as before we had awful neighbour and were renting a house in a not very nice area..

    #2
    Hi Elvisfan,

    It sounds like you are really enjoying your home so I am really sorry you are having to consider adaptions. It's really hard to make alterations we dont really want so well done for thinking ahead.

    Your OT should be able to look at your home and make recommendations and your council may be able to fund this or part of it. I spoke to a benefits advisor from the MNDA when I was first diagnosed and they are really helpful and knowledgeable.

    Take care and enjoy your house because it might stay suitable for some time.
    Love Debbie x

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      #3
      hi Elvisfan, my house is a 3 bed semi too. For my late Husband we had another stair rail, a wet room with a closimat toilet. We were just in process of planning a stair lift when he passed away. There's lots of help available. Although I am working full time the bathoom was funded apart from the extras we wanted like additional tiling, heating towel rail, cladded ceiling.

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        #4
        Hello Elvisfan I'm in a similar situation we've been in our house for nearly 15 years , I'm slow progression so I do have a bit of time, but our house is not suitable and we don't want to go through the hassle of building extension, so we have made the decision to start looking for a bungalow . You mention your mortgage, check your mortgage insurance , most offer to pay it off if life expectancy is 12 months , important to note there is no comeback on your Dr because of our illness cannot be predicted you could carry on for a few years after, you just need a sympathetic consultant, mine has agreed to do something when as he put it, don't try so hard on my next respiratory test, just need the hospitals to open again . We don't get much from this illness so grab what you can
        S.
        As long as there’s golf and beer I’m happy

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          #5
          Hi Debbie

          Please empty your inbox.

          Doug

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            #6
            Oops sorry Doug, Thank you for pointing this out. I've emptied it now and got your message.
            Love Debbie x

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              #7
              Hi Elvisfan
              I live in a 4 bed semi and originally thought I would have to move.MND affected legs at first.
              We looked at what we could do to our house and a plumber friend helped us to look at options.
              So stairlift fitted first.Next we bought reconditioned through floor lift which was half the price of a new lift( The chap buys second hand lifts and reconditions them with a guarantee all over the country).Next came converting bathroom to a wet room.( including raising the floor to give me level access from bedroom to wetroom).
              I did have to pay for it all as we had savings.So glad we didnt have to move though.
              Like Shaun suggested best to check what help with mortgage might be available first.
              Good Luck
              Mary x

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                #8
                There is a lot of help available out there. Good luck Elvisfan πŸ‘πŸ˜πŸ€—πŸ€žxx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  #9
                  This is a problem for sure, fortunately we live in a bungalow so one would think its plain sailing, NO ! place is probably about 35 years old and regs have changed so much - hardly anything has been right with it, but saying that I think you would be lucky to get away with no changes, so far we have had the ramps outside and inside, doors widened, grab rails for man and beast, my front room is converted into Albert's bedroom with a hospital bed, a full wetroom conversion and recently a ceiling mounted hoist.

                  Once I get him on his power chair he is able to get from the front to back of the place and thank god we haven't had to have stairlifts etc, I don't think I have actually sat in my front room for over a year now as even though he uses it as his bedroom I still have all the furniture in and pushed to the walls so we use the conservatory which has been a god send for him as he feels he's in the garden.

                  As much as possible, and for my own sanity as much as anything else, I have tried to keep the place a home and not a nursing home.


                  Husband Albert diagnosed PMA Feb 21

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