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    #31
    Hi Lynne
    I know you must have been disappointed that it wasn't a bungalow, but if you were to refuse it you could be waiting a while for one to turn up . I am sure it will turn out to be ok . It is a big upheaval moving but it will be worth it !

    I wish you all the best for the move

    Love Chris

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      #32
      Hi Lynne
      Sounds an ideal place once the little issues have been sorted. We have both wooden and carpeted floors. Steve’s power chair does move on the carpet but unfortunately the one in the lounge has moved and wrinkled and has pulled out of door strip. We are deciding wether to take it up. I agree it is more cosy but not practical.
      Sue x

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        #33
        Lynne, it's a hard choice all right - carpet v hard flooring - and it's up to you. I'd hate for you to spend lots on a carpet only to ruin it!

        It's not only about wheelchairs - my carers find it harder to push my hoist and shower chair on carpet than on tiles (which I'll address soon)

        But you're the one who'll be living in your house, not us!!!

        Love Ellie.
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
        Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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          #34
          We've been mulling this over for months! Recently my thoughts have been - if you are going to fall, it's better to have a softer surface to land on and also now that I'm frequently dropping things, there are fewer breakages on carpet. However, conversely, it's easier to mop up spill ages on a hard floor. My current preference is for carpet tiles.

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            #35
            Hi Lisa and all. We signed and got keys for our 2 bedroomed ground floor flat over a week ago. My hubby has been painting and we got our new cooker fitted. Carpets going down a week tomorrow to give some time for the painting to be finished. We bought all curtains and blinds. Moving on 19th November. My OT is getting me a shower chair, organising grab rails for the shower area of wet-room and ordering me a rise and recline chair from the wonderful MND Association people. Everything is coming together at last. It feels good. A weight off my mind. Lynne
            Last edited by Lynne K; 9 November 2018, 08:21.
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
            I'm staying positive and taking each day as it comes.

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              #36
              It all sounds good Lynne, you will soon have it lovely and homely

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                #37
                Yea true Shrew. Thanks, Lynne
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
                I'm staying positive and taking each day as it comes.

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                  #38
                  So pleased for you Lynne.

                  More comfortable, safer and less stressful living - exactly what you need !

                  Your husband and OT are great.

                  Love Ellie.
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
                  Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

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                    #39
                    Thanks Ellie, you are spot on. Lynne xx
                    ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
                    I'm staying positive and taking each day as it comes.

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                      #40
                      My husband had a shower in our new wet-room after he finished painting today. He said the water puddled and then went under the door into the hall. We have new carpets going down next Friday. This is a worry. He noticed that the floor is uneven. What a disappointment. I doubt that the council will do anything about it. We'll have to improvise something. Lynne
                      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
                      I'm staying positive and taking each day as it comes.

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                        #41
                        You're being very polite Lynne, saying it's "disappointing" - I'd be furious at such shoddy workmanship.

                        I know you don't want to hear this but, it's best to complain loudly to the Council and insist the issue is rectified *immediately*. Yes, it will be disruptive, but honestly, the current situation is unacceptable... Would it help if the OT rang for you?

                        The slope of the hidden shower tray and/or tiling into the drain is insufficient, so the water won't clear. I spent 10 days in a newly refurbished hospice room with the same issue - water from shower flooding part of the bedroom - and it infuriated both me and the staff and had to be redone to give the proper gradient to allow for full immediate water drainage. Nothing could be left on the floor or it'd get saturated.

                        It will drive you and hubby mad Lynne if you accept it as it is, lots of towels will be needed as flood barriers every single time the shower is used - it's onerous, not to mention the impact water will have on your brand new carpet.

                        I'm really sorry for you Lynne and also for your husband who has worked so hard making the place perfect for you both

                        Big hug,

                        Love Ellie.
                        Last edited by Ellie; 10 November 2018, 14:23.
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Limb Onset.
                        Eye gaze user - No working limbs - No speech - Feeding tube - Overnight NIV.

                        Comment


                          #42
                          Thanks Ellie. The water puddle was still on the wet-room floor today from my husbands shower yesterday. I'm going to ring the Council OT tomorrow and see if she can get in touch with whoever can get it sorted out. Thanks for your explanation of the hospice shower area. What you explained is how I've been thinking the consequences would be. Fingers crossed for something to be done quickly. Lynne
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
                          I'm staying positive and taking each day as it comes.

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                            #43
                            Hi Lynne,
                            Hope it's sorted soon. You want everything right before you move in
                            Sheila

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                              #44
                              Hi, I hope you get sorted soon too.
                              Just a couple of ideas that we do to keep the shower clear...
                              Regularly remove hair and bits from the trap and stick the shower nozzle down it.
                              Rig up a shower curtain on a sprung rail to keep the water from spreading too far.
                              Use a mop and bucket immediately after so that excess water is kept to a minimum. Chenille type mop is best I find.
                              Hope this helps, sounds like the trap may be blocked or it isn't running into the drain properly.
                              Best wishes Fru x
                              Last edited by Fru; 12 November 2018, 11:26. Reason: Extra thought

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                                #45
                                Oh Lynne,
                                So sorry about this as your new home sounded ideal for you and I know how patient you've been.

                                I dont know if it helps but when we had our bathroom converted I asked why it was going to take two weeks. They said it was to change the floor so the water drained away instantly otherwise it is unsafe. If you use a shower wheelchair the person pushing could slip on the wet floor and if you are able to walk then you could slip. The company that fit it were recommended by the council and were very clued up in planning for future needs. I really hope they sort this for you soon so you can get in and be settled.

                                Our youngest son , who lives with us has history in flooding bathrooms and even he can't manage it !

                                Good Luck with everything. It's such a shame that everything is so difficult when you have enough to cope with.
                                Love Debbie x

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