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    Places to use to look for adaptations

    Is there a list on here anywhere that tells us where to shop for adaptations?
    I will start with ones i have seen or used:

    ActiveHands.com - for those of us with limited hand use. Mostly seems to be for those who like to go to the gym as the guy who started it is a keen gym person.
    www.completecareshop.co.uk - there is a shop fairly near me where i was able to try a few bits. They had a lot of buggies etc.

    Am i silly suggestibg this? After all, you just need to ask google to get a list? Perhaps if we report on the usefulness and cost? What do you all think?
    Mum died with MND in 1979 – I have a wonky gene, probably inherited from her. Reckon mine started sometime in 2018

    #2
    Hello EvelynMW

    Thank you for posting and suggesting this.

    I am at the start of this journey, looking for what would be useful for my Dad, who is hesitant to try or use any adaptations just yet. However, I am already thinking he could do with something easier to use just for making a hot drink, i.e. he doesn't have upper arm strength or hand grip strength to lift a full kettle.

    Thinking of tilting kettle or, that machine which dispenses one cup of hot water, when needed. In other words, he could lift a cup of hot fluid with much more ease, rather than struggle to fill the kettle, put it back on the counter, and then risk trying to pour out boiling water on his own...

    The question is, which one? Tilt Kettle or 'one cup machine'? Which is best/more value/easier to use, or, thinking of the future, as his grip may get less and less, I am wavering towards the machine. Don't know what its called...... don't know where to buy one....

    If anyone could compile a list, or, even a list of what they find useful/where from with a review, that would be a fantastic aid for us, and hopefully everyone else.
    Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

    Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

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      #3
      The kettle that pours from a heating position is avalaible , just google kettle for weak hand and you should get a choice. I was looking for a board to cut things on and found a difference of over Β£10 in its price, also, some add P&P, with some it is included.
      Mum died with MND in 1979 – I have a wonky gene, probably inherited from her. Reckon mine started sometime in 2018

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        #4
        Ok. I found this, after actually looking for a few minutes:

        https://focusondisability.co.uk/disa...er-dispensers/

        Which describes them as hot water dispensers.... doh....

        But does anyone have one, and, think they are good?
        Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

        Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

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          #5
          Looks like you needed to click on kettle tippers. For any specific item, goggle the shopping choices so as not to over pay
          Mum died with MND in 1979 – I have a wonky gene, probably inherited from her. Reckon mine started sometime in 2018

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            #6
            That appeared on site recently if any use https://forum.mndassociation.org/for...item#post41665

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              #7
              I'd be interested in finding something that would help get someone off the floor. I watched a video on YouTube which was fine if relatively fit and can use hands and arm strength. My husband's hands are pretty much useless and his arms are very week. He slid to the floor the other day. Not hurt but between wardrobe and bed. It was a struggle to get him onto one knee. No room to push or pull. A vid on YouTube suggested using a belt to pull the hips but not sure that would work without causing damage. If anyone finds anything or has ideas id love to know. πŸ™„

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                #8
                [QUOTE=EvelynMW;n51705]Is there a list on here anywhere that tells us where to shop for adaptations?
                I will start with ones i have seen or used:

                I use this which I can highly recommend. Hot water always on tap and safe to use. I have a tremor and would not recommend a tipping kettle.

                https://www.amazon.co.uk/Addis-Insta...language=en_GB


                I’m going to do this even if it kills me!

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                  #9
                  Sadly everything has limited use. We can't improve but we can adapt. Sorry to play devils advocate πŸ˜‰x
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #10
                    Hi EvelynMW

                    Whilst we don't have a comprehensive list of local shops that provide adaptations, we do have some national ones on our Useful Organisations page www.mndassociation.org/usefulorgs We also offer the following info as a starting point (including details of some national providers) downloadable at www.mndassociation.org/careinfo
                    • Living with motor neurone disease (MND) – a comprehensive guide on daily living with the condition
                    • 10B What is social care? – with guidance on how to get your needs assessed (where your can ask about local providers and services)
                    • 10C Disabled Facilities Grants – for guidance on home adaptation
                    • 11C Equipment and wheelchairs – for ideas on what to consider for assistive equipment
                    • 11E Environmental controls – for ideas on remote control of facilities and devices.
                    Hope that helps!
                    Our working hours are Monday to Friday 8:30am until 5pm

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                      #11
                      thank you, it make sense that you would have this.
                      Mum died with MND in 1979 – I have a wonky gene, probably inherited from her. Reckon mine started sometime in 2018

                      Comment


                        #12
                        Hello Evelyn
                        A couple of sites for you to look at for kitchen aids
                        https://www.essentialaids.com/kitche...ding-aids.html
                        https://www.completecareshop.co.uk/kitchen-aids/

                        re active hands I did buy their cat tongue tape and have stuck to things like my phone and wallet to help me hold them, but as you say most of the stuff was for the gym
                        shaun
                        As long as there’s golf and beer I’m happy

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                          #13
                          MND Association as posted today are a good starting place.Tye MND Association also might fund a few items if referred by a health professional.
                          The Hospice OT also has provided advise as needs change for me..not needed anything yet but getting closer as hand strength going now.
                          I love my iPad and mobile phone stand bought by a friend..useful when Facetiming as struggle to hold iPad for long.
                          Ot suggested various types of cutlery as strength to cut diminishes.
                          The hospice OT is my go to first for advise as needs change.
                          Best wishes
                          Mary

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                            #14
                            Thank you everyone - and for the reminder to check MND site! Doh....

                            I am starting with just the hot water dispenser... starting small.... and then if Dad likes this, he may be open to more things. Don't want to over-whelm him, or deluge him with stuff.

                            I am also thinking that this will be safe for Mum if her memory issues get worse i.e. could set temperature at a safe level so she is safe too.
                            Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

                            Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

                            Comment


                              #15
                              Don't we all just love Health and Safety. πŸ˜‰
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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