Announcement

Collapse
No announcement yet.

Appropriate toilets - is it too much to ask?!

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    Appropriate toilets - is it too much to ask?!

    So, a bit of a saga!
    i had an appointment at the chest clinic at Kings College Hospital in London. I have no use of my legs and so use a sling and ceiling hoist to independently get on and off the toilet. I rang PALS to ask where a toilet with a ceiling hoist was situated. In the whole of the hospital there isn’t one (including the wards). I explained that this was what I needed and over the course of several conversations and her checking with the compliance and health and safety dept these were some of the questions/comments asked:
    “What exactly is wrong with you?”
    ”Can’t your husband put you on the toilet?” (We are both 60!!!)
    “We can get a mobile hoist, would that be any good?” “Yes please”
    ”Other people use pads” “I’m not at that stage yet”
    ”What time will you need the toilet?” !!!!!!!!!
    I was finally told that it would be up to the individual clinic to make sure they had someone trained and available when i had my appointment.

    The appointment was cancelled!! It was transferred to St Thomas’s. (Here we go again!)

    I noticed that on their website they have a lovely picture of a new toilet. I asked the nurse on the Lane Fox clinic the same question - mentioning the picture. “The website is wrong - i would know if such a facility existed. I’m a physiotherapist. We have a mobile hoist but it won’t fit in the disabled toilet”

    Phone call to PALS, no idea.
    Passed on to housekeeping, no idea.
    Passed on to main reception “I can see the toilet from here but I don’t know what it looks like inside”
    Passed on to security, no answer!
    Passed on to communications - BINGO! “Hello, I’m the press officer. I took the photos and I will send them to you”

    So - for anyone who goes to St Thomas’s - they have a lovely new Changing Places toilet.

    Next stop - harangue Kings hospital! Seeing as my parents little shopping centre in the West Midlands has one I think its high time they did too!!

    #2
    First off Sarah - I really admire your tenacity!

    Yes, you'd have thought that a hospital, of all places, would be able to provide a bathroom capable of accommodating a portable hoist, let alone a Changing Places bathroom... So no, definitely is not too much to ask.

    Of all the conversation quips you quoted, my 'favourite' is:
    ​​​​​​
    Originally posted by Sarahw View Post
    Passed on to main reception “I can see the toilet from here but I don’t know what it looks like inside”
    And I'm wondering if that's still the case, or have they actually bothered to find out.

    Love Ellie.

    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    Comment


      #3
      Unbelievable 😲

      Comment


        #4
        I should say something like shocking. But I'm not shocked or surprised. It's just rather sad.

        Comment


          #5
          Sadly our experience with our local hospital (Musgrove Park) Taunton was the same, even more ironic is the lack of facilities in the neurological studies department, this was where my wife was diagnosed with ALS and where we are expected to go for clinics. 😡
          Husband and carer to my wonderful wife diagnosed with ALS Oct 20.

          Comment


            #6
            This beggars belief ...........A couple of years back when we were starting to think of disabled equipment etc etc I clearly remember saying to Albert there are going to be cases when I'm gonner get mad due to lack of facilities whether it be drop kerbs or some such..........this would hav e made me so mad
            Husband Albert diagnosed PMA Feb 21

            Comment


              #7
              Sarah it was for exactly that reason we refused to go to any hospitals.

              Comment


                #8
                That’s awful Sarah. I don’t have a clue what Salford Royal where I go. Luckily I don’t need a hoist yet. The disabled toilet in the clinic area is a normal hospital disabled toilet and doesn’t have a hoist. I’ve never seen one about. The lack of decent disabled toilets anywhere is one of the many reasons that they applied for having a subpubiccathater or whatever itself called, Lynne x
                Last edited by Lynne K; 23 May 2021, 15:19.
                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                I'm staying positive and taking each day as it comes.

                Comment


                  #9
                  The nicest toilets here are in lidl but I haven't seen one with a hoist.

                  Comment


                    #10
                    Originally posted by denise View Post
                    The nicest toilets here are in lidl but I haven't seen one with a hoist.
                    They probably sell them in the centre aisle 😏
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    Comment


                      #11
                      Oh yeah. Clever sales technique.

                      Comment

                      Working...
                      X