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    At long last

    Well after waiting a long long time they are starting my wet room on Monday yay!! I so can’t wait for a shower πŸšΏπŸ€— Janette x
    Janette x

    #2
    Oh that's wonderful news Janette!!

    It'll only take a few days, will it? 🀞🀞 😘
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      #3
      Thats great news Janette ...what a long time you've had to wait.

      I'm really happy for you. You will enjoy that shower! πŸ˜˜πŸ€—x

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        #4
        Ellie thanks, they said it will take 2weeks πŸ€¦πŸΌβ€β™€οΈ X
        Deb thanks it better be worth the wait πŸ€— x
        Janette x

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          #5
          2 weeks of workmen getting our loo in next week. Hope its delivered soon. I haven't got a bucket so I hope it doesn't take long 😳
          when i can think of something profound i will update this.

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            #6
            That’s great Jeanette xx
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

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              #7
              Singing soon girl πŸ‘πŸ€—πŸ˜˜πŸ˜xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                Hi Janette,I love my wetroom and it will be so great for you and make life easier hopefully.
                Just had my shower, make up on and ready for a wheelchair ride in the sunshine.
                I love being out but I can see the shock on people known to me faces as they see the weight loss .
                We go past the undertakers in the village and I say to my husband β€œ he will have to wait a bit longer β€œ
                My speech is a bit slurred so people might think I am on the wine πŸ˜‚
                Mary

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                  #9
                  Originally posted by Mary C View Post
                  We go past the undertakers in the village and I say to my husband β€œ he will have to wait a bit longer β€œ
                  That's the spirit, girl - I love it πŸ‘πŸ‘πŸ€—πŸ˜˜

                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    #10
                    Originally posted by Mary C View Post
                    Hi Janette,I love my wetroom and it will be so great for you and make life easier hopefully.
                    Just had my shower, make up on and ready for a wheelchair ride in the sunshine.
                    I love being out but I can see the shock on people known to me faces as they see the weight loss .
                    We go past the undertakers in the village and I say to my husband β€œ he will have to wait a bit longer β€œ
                    My speech is a bit slurred so people might think I am on the wine πŸ˜‚
                    Mary
                    I can’t wait because the worse I’ve got it makes it harder for Phil πŸ₯Ίand it’s such an effort for both of us and I don’t always feel like I’m totally clean 😬
                    I think that’s why I’ve got to the stage where I don’t want to go out πŸ€·β€β™€οΈ
                    I can imagine their faces when you go past the undertakers Mary lol πŸ˜‚ Janette x
                    Janette x

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                      #11
                      I have to confess I haven't been out for ages. Don't really know why just haven't. πŸ˜πŸ€—πŸ˜˜πŸ˜xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                      Comment


                        #12
                        Nettie You're right Janette - nothing like a good shower to feel human / normal / squeaky clean.

                        You'll have to splash out on nice bodywash and a new body puff or sponge to celebrate the occasion (no 99p stuff πŸ˜ƒ) and maybe even new towels.

                        Love Ellie.

                        PS. We're not expecting a video 😍
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        ​

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                          #13
                          Originally posted by matthew55 View Post
                          I have to confess I haven't been out for ages.
                          From what I've heard, we're not missing out on much... 😏 😘😘

                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            #14
                            Originally posted by matthew55 View Post
                            I have to confess I haven't been out for ages. Don't really know why just haven't. πŸ˜πŸ€—πŸ˜˜πŸ˜xx
                            It just an effort so I’d rather not put myself through it, I think I’ll start going round the block x πŸ€—
                            Janette x

                            Comment


                              #15
                              Originally posted by Ellie View Post
                              Nettie You're right Janette - nothing like a good shower to feel human / normal / squeaky clean.

                              You'll have to splash out on nice bodywash and a new body puff or sponge to celebrate the occasion (no 99p stuff πŸ˜ƒ) and maybe even new towels.

                              Love Ellie.

                              PS. We're not expecting a video 😍
                              Already got new towels ready πŸ€— I’m going to treat myself to some goodies πŸ₯°
                              phil says we are going to spend all day in the shower 🚿 I think that’s a bit too far πŸ€¦πŸΌβ€β™€οΈπŸ€£
                              Janette x

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