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    Well I’m hoping to get back downstairs later today after 3 long weeks 🤦🏼‍♀️ Phil is just giving it a clean and trying to fit furniture back in the best he can 👍 they’ve not completely finished yet but said we can go back down, but still can’t have a shower as still waiting for the shower chair that’s on order 🤦🏼‍♀️ Oh well a few more days won’t hurt 🤷‍♀️ Story of my life 😂 Janette x
    Janette x

    #2
    Great news Netty,
    My shower chair turned out to be a 6 months saga.It wouldn’t fit over bio bidet so had to have a customised one in the end that now fits over it.
    Bet you can’t wait for a shower and to be able to access downstairs.
    Best wishes
    Mary

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      #3
      Ah Janette, bless Phil's little cotton socks 🤗 I can imagine him trying to fix the rooms and clean them just for you 💕
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
      .

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        #4
        Great news I hope you have a ribbon to cut and champagne on hand. 🎊🎉🍾🥂xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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          #5
          Mary C aww no hope that doesn’t happen 🤦🏼‍♀️ I couldn’t cope with that as well 😂
          Janette x

          Comment


            #6
            Ellie I know he’s a good un although he is stressing a bit 🤯😬
            Janette x

            Comment


              #7
              Thanks Matthew, not quite I don’t want to have a mishap 🚿🥂😊
              Janette x

              Comment


                #8
                Oh goodness Janette. Hope you've been downstairs and the long awaited shower happens soon.

                Love and hugs to you and Phil xx😘🤗

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                  #9
                  Deb Hi we managed to get downstairs early evening after a mini meltdown we got sorted in the end 👍 Going to try the shower today hopefully 🙏🏻 let you know how we get on. love Janette x
                  Janette x

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                    #10
                    Originally posted by Nettie View Post
                    we managed to get downstairs early evening after a mini meltdown
                    You did well that it was just a "mini" meltdown Janette!

                    SOOOOO hope you get a nice shower today 🤞🤞🤞😘

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                    .

                    Comment


                      #11
                      Originally posted by Ellie View Post
                      You did well that it was just a "mini" meltdown Janette!

                      SOOOOO hope you get a nice shower today 🤞🤞🤞😘
                      Thanks Ellie 🤗 yes yes yes had my first shower!!! I feel so good 😍 We used our spare large commode it wasn’t ideal but it worked until we speak to the OT tomorrow 👍 love Janette xx
                      Janette x

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                        #12
                        Yeah well done janette. Glad to hear its finally happened oh and I saw your picture in the mnd magazine. I said to Stephen I recognised the person in that picture 😘🥰
                        when i can think of something profound i will update this.

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                          #13
                          It was lovely Denise 🥰 I’ve been sleepy since 😂 Oh did you see it? It was quite weird seeing myself 😬 but it was for a good cause 😊 love Janette xx
                          Janette x

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                            #14
                            Yippee Janette. Am celebrating your shower. It must feel soooo good.

                            I too saw your fundraising in the magazine. Congratulations to you xx😘🥇🤗

                            Comment


                              #15
                              Okay this is going to make me look bad but which page are you on? I've been through it a dozen times! 🤔😉🤗😍xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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