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    Well Iโ€™m hoping to get back downstairs later today after 3 long weeks ๐Ÿคฆ๐Ÿผโ€โ™€๏ธ Phil is just giving it a clean and trying to fit furniture back in the best he can ๐Ÿ‘ theyโ€™ve not completely finished yet but said we can go back down, but still canโ€™t have a shower as still waiting for the shower chair thatโ€™s on order ๐Ÿคฆ๐Ÿผโ€โ™€๏ธ Oh well a few more days wonโ€™t hurt ๐Ÿคทโ€โ™€๏ธ Story of my life ๐Ÿ˜‚ Janette x
    Janette x

    #2
    Great news Netty,
    My shower chair turned out to be a 6 months saga.It wouldnโ€™t fit over bio bidet so had to have a customised one in the end that now fits over it.
    Bet you canโ€™t wait for a shower and to be able to access downstairs.
    Best wishes
    Mary

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      #3
      Ah Janette, bless Phil's little cotton socks ๐Ÿค— I can imagine him trying to fix the rooms and clean them just for you ๐Ÿ’•
      โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      โ€‹

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        #4
        Great news I hope you have a ribbon to cut and champagne on hand. ๐ŸŽŠ๐ŸŽ‰๐Ÿพ๐Ÿฅ‚xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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          #5
          Mary C aww no hope that doesnโ€™t happen ๐Ÿคฆ๐Ÿผโ€โ™€๏ธ I couldnโ€™t cope with that as well ๐Ÿ˜‚
          Janette x

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            #6
            Ellie I know heโ€™s a good un although he is stressing a bit ๐Ÿคฏ๐Ÿ˜ฌ
            Janette x

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              #7
              Thanks Matthew, not quite I donโ€™t want to have a mishap ๐Ÿšฟ๐Ÿฅ‚๐Ÿ˜Š
              Janette x

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                #8
                Oh goodness Janette. Hope you've been downstairs and the long awaited shower happens soon.

                Love and hugs to you and Phil xx๐Ÿ˜˜๐Ÿค—

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                  #9
                  Deb Hi we managed to get downstairs early evening after a mini meltdown we got sorted in the end ๐Ÿ‘ Going to try the shower today hopefully ๐Ÿ™๐Ÿป let you know how we get on. love Janette x
                  Janette x

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                    #10
                    Originally posted by Nettie View Post
                    we managed to get downstairs early evening after a mini meltdown
                    You did well that it was just a "mini" meltdown Janette!

                    SOOOOO hope you get a nice shower today ๐Ÿคž๐Ÿคž๐Ÿคž๐Ÿ˜˜

                    โ€‹Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    โ€‹

                    Comment


                      #11
                      Originally posted by Ellie View Post
                      You did well that it was just a "mini" meltdown Janette!

                      SOOOOO hope you get a nice shower today ๐Ÿคž๐Ÿคž๐Ÿคž๐Ÿ˜˜
                      Thanks Ellie ๐Ÿค— yes yes yes had my first shower!!! I feel so good ๐Ÿ˜ We used our spare large commode it wasnโ€™t ideal but it worked until we speak to the OT tomorrow ๐Ÿ‘ love Janette xx
                      Janette x

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                        #12
                        Yeah well done janette. Glad to hear its finally happened oh and I saw your picture in the mnd magazine. I said to Stephen I recognised the person in that picture ๐Ÿ˜˜๐Ÿฅฐ
                        when i can think of something profound i will update this.

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                          #13
                          It was lovely Denise ๐Ÿฅฐ Iโ€™ve been sleepy since ๐Ÿ˜‚ Oh did you see it? It was quite weird seeing myself ๐Ÿ˜ฌ but it was for a good cause ๐Ÿ˜Š love Janette xx
                          Janette x

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                            #14
                            Yippee Janette. Am celebrating your shower. It must feel soooo good.

                            I too saw your fundraising in the magazine. Congratulations to you xx๐Ÿ˜˜๐Ÿฅ‡๐Ÿค—

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                              #15
                              Okay this is going to make me look bad but which page are you on? I've been through it a dozen times! ๐Ÿค”๐Ÿ˜‰๐Ÿค—๐Ÿ˜xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong ๐Ÿค—๐Ÿ˜˜๐Ÿค—๐Ÿ˜xx

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