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Cruising made possible

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    Cruising made possible

    I want to share what I think is a heart warming story about two of my local group members. I do have their permission as they both work tirelessly to raise awareness of MND. Indeed Chris was one of those who recently went to Downing Street as part of the united to end campaign. Well done to the Sunday Express for getting involved in making lasting memories.
    Certainly not many of us might be able to afford a cruise but this story shows what might be possible on more affordable breaks. ​

    #2
    Is there a link somewhere?
    I am off on a Mediterranean cruise next week and I'm wondering how it will work out.
    Hi, I'm Eddie.
    Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
    Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
    Still wondering what the future will bring.

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      #3
      Originally posted by WheelsOfSteel View Post
      Is there a link somewhere?
      I am off on a Mediterranean cruise next week and I'm wondering how it will work out.
      Hi Eddie what link are you looking for.

      Comment


        #4
        Ah, I thought you were referring to a story or article posted somewhere else.
        Apologies for misunderstanding.
        Hi, I'm Eddie.
        Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
        Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
        Still wondering what the future will bring.

        Comment


          #5
          WheelsOfSteel no worries. Enjoy your cruise πŸ›³

          Comment


            #6
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            Is it this ☝️☝️@Bowler?
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

            Comment


              #7
              LindaB yeah that’s it thank you

              Comment


                #8
                Thanks LindaB
                Hi, I'm Eddie.
                Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
                Still wondering what the future will bring.

                Comment


                  #9
                  Bowler great story….πŸ‘πŸ»πŸ’™
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                  Comment

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