Ellie πsomething like that. It's very stylish...π
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
I shall give it a whirl πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Netflix The Kitchen you girls will love itBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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If its cooking forget it.when i can think of something profound i will update this.Comment
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I discovered βSchmigadoon!β (Apple TV+) on Saturday. Funny and enchanting, lots of musical numbers that you think are familiar. 6 episodes, done in a day. Recommended if youβre not looking for something heavy and meaningful.Diagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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Nothing to do with cookingBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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LindaB My once-reviled hospital bed is henceforth known as The Duke, for obvious reasons ππππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ellie now you've got Reacher & The Duke...ππππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Ellie - the cushion I put between my thighs while I sleep is called the Duke too... I even confessed to my husband π€£Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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Now that's an entirely different level of adoration Tiny ππππOriginally posted by TinyLady View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ellie - when I went into the hospice my husband asked me if I wanted him to bring the Duke in.... I had to giggle. Why I confessed I named the cushion that I don't know, but hubby took it well π€£π€£π€£Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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New series of Gentleman Jack tonight. Bbc1 9pm. Love Suranne Jones in most dramas....great actorβββββInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Yep, I'm always drawn to dramas she is in ππOriginally posted by LindaB View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Last episode of the Ipcess File tonight πBulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comesComment
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I enjoyed the seriesππ»πOriginally posted by Hakuna View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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