Ellie πsomething like that. It's very stylish...π
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Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ -
I shall give it a whirl πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Netflix The Kitchen you girls will love itBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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If its cooking forget it.when i can think of something profound i will update this.Comment
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I discovered βSchmigadoon!β (Apple TV+) on Saturday. Funny and enchanting, lots of musical numbers that you think are familiar. 6 episodes, done in a day. Recommended if youβre not looking for something heavy and meaningful.Diagnosed October 2020 - See my blog at https://www.myneurodiary.comComment
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Nothing to do with cookingBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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LindaB My once-reviled hospital bed is henceforth known as The Duke, for obvious reasons ππππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ellie now you've got Reacher & The Duke...ππππInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Ellie - the cushion I put between my thighs while I sleep is called the Duke too... I even confessed to my husband π€£Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.
Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.
Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.Comment
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Now that's an entirely different level of adoration Tiny ππππOriginally posted by TinyLady View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Ellie - when I went into the hospice my husband asked me if I wanted him to bring the Duke in.... I had to giggle. Why I confessed I named the cushion that I don't know, but hubby took it well π€£π€£π€£Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.
Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.
Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.Comment
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New series of Gentleman Jack tonight. Bbc1 9pm. Love Suranne Jones in most dramas....great actorβββββInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Yep, I'm always drawn to dramas she is in ππOriginally posted by LindaB View PostβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Last episode of the Ipcess File tonight πBulbar ALS diagnosed September 2021, no speech, PEG fed, using ipad with Predictable to communicate, taking each day as it comesComment
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I enjoyed the seriesππ»πOriginally posted by Hakuna View PostInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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