It seems that Bank Holidays are just that, a holiday. Well living with MND is 24/7 and having worked in an industry that didn't recognize Christmas Day I feel sickened.π
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
And Sod's Law states: if something goes wrong, it'll go wrong at 5.20pm on the Friday of a Bank Holiday Weekend ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Or the Thursday before Good Friday!!!π
RichardRichardComment
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God forbid Easter Sunday πBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Well it's not bank holiday here but the gas ran out while I was in the shower.
when i can think of something profound i will update this.Comment
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That's brilliant, it means that you're due a good thing! ππxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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That would be really nice. I'll let you know what turns up πwhen i can think of something profound i will update this.Comment
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its a sad time for me. anniversay of my dad and brother's deaths. so i was thinking quite a lot of us all together as a family. funny the things our mother's teach us. like for instance if you get an itchy nose then you will get a surprise! if you get an itchy bum then you have worms. i can't recall if i passed these little gems onto my kids. what on earth made me think of these i will never know but i have a feeling it was you saying you're due a good thing. wearing a mask always gives me an itchy nose and as for worms...........! none!
when i can think of something profound i will update this.Comment
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Don't worry I still say hello to every single magpie! πxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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