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    And Christmas hugs from me xx
    Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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      And from me. 😘😘


      Picture1.jpg
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

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        Belated Christmas hugs to everyone! Hope you're having the best day possible xxπŸ˜˜πŸ€—πŸ₯‚

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          My hugs are almost too big to handle. But I have faith in you. πŸ€—πŸ˜πŸ˜˜πŸ˜xx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            Boxing day hugs for all. I've got 2 little πŸ•πŸ• staying over too so hugs from Milly & Bella xxπŸ€—πŸ€—
            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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              Boxing day hugs here.

              I have a cat called milly. She has an ear infection so yesterdays attempt at ear drops has left me with a scratched face and leg. Vets tomorrow. I'm not trying again today. 😘πŸ₯°πŸ€—
              when i can think of something profound i will update this.

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                denise Hope you're up to date with a tetanus jab? 🀞😘😘
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  No. The amount of cat scratches and bites I've had have been like vaccinations. Should keep my mouth shut and not tempt fate. 😘
                  when i can think of something profound i will update this.

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                    Morning hugs here. I'm still in bed. I could go and turn the heating on but think I will stay a bit longer. Xxx
                    when i can think of something profound i will update this.

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                      Post Christmas hugs. Will miss cuddles with my 6 month old granddaughter xx
                      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                        Hugs are healthy and free from additives, apart from love and kindness. πŸ€—πŸ˜ŠπŸ’—πŸ’–xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          HUGS all round πŸ€—πŸ€—πŸ€—
                          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                            A rather late hug for all πŸ€—πŸ€—πŸ€— but I had visitors and couldn't ignore them completely 😏
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              πŸ€— a hug if you need one...πŸ€— πŸ’ž
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                                My hugs are not negotiable. πŸ€—πŸ˜πŸ˜˜πŸ˜xx
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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