And Christmas hugs from me xx
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Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily. -
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Belated Christmas hugs to everyone! Hope you're having the best day possible xxππ€π₯Comment
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My hugs are almost too big to handle. But I have faith in you. π€πππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Boxing day hugs for all. I've got 2 little ππ staying over too so hugs from Milly & Bella xxπ€π€Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Boxing day hugs here.
I have a cat called milly. She has an ear infection so yesterdays attempt at ear drops has left me with a scratched face and leg. Vets tomorrow. I'm not trying again today. ππ₯°π€when i can think of something profound i will update this.Comment
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denise Hope you're up to date with a tetanus jab? π€ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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No. The amount of cat scratches and bites I've had have been like vaccinations. Should keep my mouth shut and not tempt fate. πwhen i can think of something profound i will update this.Comment
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Morning hugs here. I'm still in bed. I could go and turn the heating on but think I will stay a bit longer. Xxxwhen i can think of something profound i will update this.Comment
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Post Christmas hugs. Will miss cuddles with my 6 month old granddaughter xxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Hugs are healthy and free from additives, apart from love and kindness. π€πππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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HUGS all round π€π€π€Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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A rather late hug for all π€π€π€ but I had visitors and couldn't ignore them completely πβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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π€ a hug if you need one...π€ πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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My hugs are not negotiable. π€πππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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