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    Thanks Denise

    It's just this isn't a happy time for me. Two years ago a close forum friend was close to death.

    Doug
    Diagnosed April 2017

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      oh doug im sorry. christmas and new year make things so difficult. everyone is celebrating but the ones that are missing make it such a difficult time.

      a big hug and a kiss from me and anyone else who is feeling sad.

      love you all xxxxxxxxx
      when i can think of something profound i will update this.

      Comment


        Originally posted by Doug Carpenter View Post
        It's just this isn't a happy time for me. Two years ago a close forum friend was close to death.
        I understand Sweetie but you know that she wouldn't want you to remember her as being 'close to death', but as the gracious, intelligent and vivacious lady she was...

        Anyway, I promised her I'd look after you after she died, so here's an extra special D & E hug πŸ˜šπŸ€—πŸ˜š

        Love ya Doug, as does everyone on the forum xxxxx
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

        Comment


          Bless you Ellie!

          Doug xx
          Diagnosed April 2017

          Comment


            Beautiful words Ellie . Youre so right about a vivacious, graceful and very funny lady and about loving you Doug. Mr milk tray man !

            Love and hugs xxxπŸ˜˜πŸ€—πŸ’•

            Comment


              Originally posted by Deb View Post
              Mr milk tray man !
              That's a great shout Deb πŸ‘πŸ‘

              I can see Doug swinging through a window, box of Milk Tray under his arm 😍😍
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

              Comment


                The OT would want to do a risk assessment!

                Doug xx
                Diagnosed April 2017

                Comment


                  Originally posted by Doug Carpenter View Post
                  The OT would want to do a risk assessment!
                  πŸ‘πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜˜

                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

                  Comment


                    I am jelly πŸ“πŸ’πŸŠπŸ‡xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                    Comment


                      Ok hug time here even for the jelly.
                      πŸ’•πŸ˜˜πŸŽŠ
                      when i can think of something profound i will update this.

                      Comment


                        πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—1st hug for 2022
                        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                        Comment


                          New Year same old hugs. Go on, you know you want one. πŸ€—πŸ€—πŸ€—β€οΈxx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                          Comment


                            I'm up for it. Can't beat a hug or cuddles - is there a difference? πŸ€—πŸ€—πŸ€—πŸ€—πŸ˜˜
                            when i can think of something profound i will update this.

                            Comment


                              Originally posted by denise View Post
                              Can't beat a hug or cuddles - is there a difference?
                              Geez Louise, I'm glad I never slept with you πŸ˜‰πŸ€£πŸ€£πŸ€£πŸ˜˜

                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                              ​

                              Comment


                                Morning, ok cuddles, hugs anything I'm here.
                                i was only asking just make sure we are all doing the same.
                                πŸ’•πŸ˜˜πŸ’—πŸ˜ŠπŸ˜Œ
                                when i can think of something profound i will update this.

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