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    Hi. I know it can be like that. I've just had the social worker on the phone and shes coming Thursday. I really like her so that's a big plus. Its just covering all my issues that upsets me. I hate repeatedly going over things. Taking one day at a time is my mantra but it cant be that way if I'm repeating stuff. Anyway shes showing me how to arrange respite and care and anything else I need. Crumbs I should prepare a list.
    hugs to everyone πŸ€—πŸ₯°πŸ˜˜πŸ€—
    when i can think of something profound i will update this.

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      Originally posted by denise View Post
      Hi. I know it can be like that. I've just had the social worker on the phone and shes coming Thursday. I really like her so that's a big plus. Its just covering all my issues that upsets me. I hate repeatedly going over things. Taking one day at a time is my mantra but it cant be that way if I'm repeating stuff. Anyway shes showing me how to arrange respite and care and anything else I need. Crumbs I should prepare a list.
      hugs to everyone πŸ€—πŸ₯°πŸ˜˜πŸ€—
      Good news😘😘
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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        Good luck Denise xx
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.

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          Morning everyone. No one here for hugs? What's going on?
          😳
          when i can think of something profound i will update this.

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            Hell yeah. I need a full on hug please denise don't hold back

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              Ok my little love. Life can be a pain in the bum but a hug can take it away. For a while anyway xxxx
              when i can think of something profound i will update this.

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                Go then have a huge hug from me. πŸ€—πŸ˜πŸ˜˜πŸ˜xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  I hug you and you hug me, is there anywhere we would rather be? πŸ€—πŸ˜πŸ˜šπŸ˜xx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    Morning huggables. Looks like a nice day. Well it does from my bed xxxxx
                    when i can think of something profound i will update this.

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                      Hugs are the meaning of life πŸ€—πŸ˜πŸ’•πŸ’‹xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        I'm here for a big hug. 😘
                        when i can think of something profound i will update this.

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                          Then you shall be hugged along with every other person here today. πŸ€—πŸ˜‹πŸ˜˜πŸ˜xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            Big hug coming your way.
                            Hi, I'm Eddie.
                            Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                            Still walking and talking, and wondering what the future will bring.

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                              Have you noticed that our hug club isnt as popular as it used to be? We need a plan b. πŸ€—
                              when i can think of something profound i will update this.

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                                How can anyone go off virtual hugs? Come on everyone show your support and post! πŸ‘πŸ˜β€οΈπŸ€Ÿxx
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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