Have a huggy hug. Cannot be beaten. π€πππxx
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Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx -
I gave up hugging as I never know where my hands will finish up.It's all funnyComment
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Boom - You got hugs.Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Hugs from the huggy monster. πΉπ€πͺπxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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What does a hug cost? Nuffink. π€ππ§πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Found this topic and thought it was right up my street. Blooming love a good hug!
Sending hugs to you all tonight.
My last few hours of being 46... wild partying all day tomorrow and swinging from the lampshades for me! XxDiagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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Big birthday hugs from me too TinyLady .
Hope you're being well looked after tonight before your wild partying tomorrow. Xxππ€Comment
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Diagnosis confirmed as atypical ALS Jan 2022 (age 46) after several years misdiagnosed.
Symptoms began in left foot 2017. Now widespread. Powerchair user, useless left arm and clumsy right hand but generally positive!Comment
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Happy birthday hugs coming to you TinyLady x π€πππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Happy Bithday TinyLady
I hope you are being well looked after. Enjoy your time with your family and cats x
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Hugs to everyone else π€Diagnosed 3rd November 2021 Bulbar OnsetComment
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Has anyone heard from Denise. Its been a few days now and I'm worried. I'd appreciate a response . ThanksComment
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TinyLady ππΎπsending virtual cake....bubbles & a bouquet..HAPPY BIRTHDAYπ€π€Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββComment
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Big hugs to TinyLady and best wished for a Happy Birthday.
Plenty more hugs available for anyone who needs one...Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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