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    I'm up for a hug. Actually had a call from surgery and an apology from a doctor. Amazing. so hopefully things might improve. I hope so anyway.
    🤗😘🤗🤗💗
    when i can think of something profound i will update this.

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      Hugs Denise and all. Great to get an apology from any professionals. My GP service apparently has 8 clinical staff off sick and are only doing emergency x
      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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        Medical hugs are now available 😷🤗🤗🤗❤️xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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          All together now.... Group hug!!!! 🤗🤗🤗❤️xxx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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            Afternoon hugs 🤗😘🤗
            when i can think of something profound i will update this.

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              Morning hugs, all day hugs. 😘🤗😘🤗🤗 I'm here.
              when i can think of something profound i will update this.

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                Warm hugs to all on this frosty morning
                Hi, I'm Eddie.
                Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
                Still walking and talking, and wondering what the future will bring.

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                  Really chilly again. Morning everyone hugs here. 😘🤗😘😘🤗
                  when i can think of something profound i will update this.

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                    Volcanic hugs are here. Today only. 🤗🤗🤗🤗xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                      What's a volcanic hug? 🤔
                      when i can think of something profound i will update this.

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                        Very hot
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                          Needed a volcanic hug. Been away for a fabulous weekend with hubby and youngest daughter. But I am exhausted and chilly now. Time for bed I think! Hugs to all xx
                          Diagnosis confirmed Jan 2022 (age 46) after several years ignored/ misdiagnosed.

                          Symptoms began in left foot 2017. Now mainly left side, speech and some loss on right side too.

                          Unable to walk unaided (powerchair user), poor speech, left hand behaves like a drunk toddler but generally positive and determined.

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                            Hugs here. Volcanic whatever. 😂🤗😘🤗🌞 good morning 😘
                            when i can think of something profound i will update this.

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                              This is no ordinary hug.. 🤗🤗🤗🤗xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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                                A hug for all seasons, 🤗🤗🤗🤗xx
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong 🤗😘🤗😁xx

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