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Good morning Honeybuns.
Today I offer you all a "cwtch" which is a comforting cuddle, just in Welsh.
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.
Needing extra hugs today…damned pills stuck in my throat and melted, burning pain was brutal! I’m dreading to take them each day as this is happening more frequently ☹️😮💨💊🥵🔥
Morning hugs here. Angie that sounds horrible. Can you get your meds in liquid form? Can they be crushed? Some pills I'm sure have not been made to swallow! 😣
when i can think of something profound i will update this.
Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.
Needing extra hugs today…damned pills stuck in my throat and melted, burning pain was brutal! I’m dreading to take them each day as this is happening more frequently ☹️😮💨💊🥵🔥
Same thing happened to me a few weeks ago. Not only the burning pain but the inability to breathe too. Awful. Since then I always remember to have a drink just before taking pills, to make sure my mouth and throat are not at all dry, which is what caused the pill to get stuck. But I still worry it might happen again. And mine was just a tiny blood-pressure pill.
Diagnosed November 21, ALS limb onset, started in right hand June 2020
Thanks everyone for the extra hugs! I took your advice GillB and took them each with a tablespoon of applesauce, and it worked!
Applesauce hugs for all! 🤗
You might not believe this but I was having problems unblocking the sink. Anyway I had some custard stuck in the pan and I forgot it was blocked and emptied it into the sink and turned the tap on. Hey presto unblocked sink!!!
🤭
when i can think of something profound i will update this.
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