Announcement

Collapse
No announcement yet.

Hugs

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

    A big hug to all, especially Denise, I was only joking & being a bit flippant.... no wonder you are struggling a little - it will get better as you settle in. Take care of yourselves xxx
    Carer for Dad - MND (ALS) 22/4/21 and Mum Alzheimers 26/5/21.

    Girding my loins and grinding my battle axe for them both... https://forum.mndassociation.org/cor...ilies/wink.png

    Comment


      Originally posted by denise View Post
      I left Portugal without a nail file. I'm missing all kinds of bits and pieces.
      The great thing is... nail files are widely available πŸ˜‚πŸ˜‚ If all else fails, I'll post you some 😍😍😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

      Comment


        Morning everyone. I know I go on internet and I look at all the things I need. Simple things. So many bits. Some coming tomorrow ☺️ it's realising what is missing when I go to use it.

        Set up for Stephens feed different so a lot of faffing about connecting things up. Left a roll of tape and other things in Portugal. Currently has peg pipework attached to his t-shirt with a peg.

        Going to pop into small local chemist to get some bits.

        No pneumonia jab for Stephen yesterday. One left but someone higher on the at risk list will get it. I was rather annoyed. Looks like he won't get it until annual flu jab. I thought pneumonia was a worry because of the after effects of choking? Not an annual threat like flu?

        Chest clinic today. No idea what happened to our promise of transportation to the hospital. 😟
        when i can think of something profound i will update this.

        Comment


          You really truly need a big hug πŸ€—πŸ˜˜πŸ‘πŸ˜xxx
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

          Comment


            Originally posted by denise View Post
            I thought pneumonia was a worry because of the after effects of choking?
            The pneumonia jab is effective against community acquired bacterial pneumonia. Aspiration pneumonia is different, that's pneumonia caused by inhaling something into the lungs which should not be inhaled, so no vaccine will protect against that unfortunately. xx

            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

            Comment


              oh well might have know there would be more than one. always the way. so we all take our masks off and germs will have a field day. did any one go with not wearing a mask and getting a bit of paper to say they had exemption? xxx
              when i can think of something profound i will update this.

              Comment


                I can't wear one and so far no one has challenged me, even in hospital. πŸ€”πŸ§xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                Comment


                  Me neither, even got jabbed maskless. I cannot breathe with a mask on, can barely breathe without one 😏😁😁
                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

                  Comment


                    Everyone had masks on at derriford hospital. Its decided that Stephens breathing is good. All his tests are good. He's happy without his niv so he's not having one. Going to do 2 nights with a thing on his finger and back in 2 months. 😁
                    when i can think of something profound i will update this.

                    Comment


                      That's really great news for Stephen. xx
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

                      Comment


                        Hugs are tax free. πŸ‘πŸ€—πŸ˜˜πŸ˜xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                        Comment


                          Morning hugs here. Get your morning hug 😁
                          when i can think of something profound i will update this.

                          Comment


                            Hugs count no matter the hour. Have one back. πŸ‘πŸ€—πŸ˜πŸ˜€xx
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                            Comment


                              Morning peeps. Lots of hugs to everyone. Very dull and stormy out there. I think I shall stay in bed a while longer. πŸ˜šπŸ€—πŸ˜šπŸ˜™
                              when i can think of something profound i will update this.

                              Comment


                                I've woken up with a headache so I'd like to swop my hug for a virtual shoulder rub pleaseπŸ‘πŸ€—πŸ€•
                                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                                Comment

                                Working...
                                X