Hugs from me. Big hugs to everyone xxx
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when i can think of something profound i will update this. -
Just say YES to being hugged. ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Yes!Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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And hugs to all xxxDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!Comment
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Hugs here. Roll up. ππ₯°π€when i can think of something profound i will update this.Comment
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You're too scary to be hugging old ladies now - if my wheelchair could fit behind a curtain, that's where I'd be π±π±π±ππOriginally posted by matthew55 View Post
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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It's the thought that counts πππ€πxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Only 100% pure warm cuddles and hugs available here. π€πππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Gratefully accepted π€π€ - the warmer the better these days ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Definitely getting to be cuddling weather. Luckily this flat is warm and the sun is out.
Looks like theres an oyster glut . Not that I'm into a lot of fishy stuff. Just thought I'd throw that in from local news. π₯°ππwhen i can think of something profound i will update this.Comment
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Ugh oysters is like eating snot! Have a hug to take your mind off what I just said. πππ€πxx
βββββBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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No I agree it's like tipping, awww, yeah exactly. Why did anyone think to do that?
when i can think of something profound i will update this.Comment
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Yep, they're not being exported much these days...Originally posted by denise View Post
But I have π€π€π€π€π€ galore to export - tariff free, quota free and no paperwork required ππ
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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I would spend eternity hugging you ππ€ππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxxComment
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Aww, thanks mate πππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
βComment
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