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    Hugs from me. Big hugs to everyone xxx
    when i can think of something profound i will update this.

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      Just say YES to being hugged. πŸ˜πŸ€—πŸ˜˜πŸ˜xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        Yes!
        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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          And hugs to all xxx
          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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            Hugs here. Roll up. 😘πŸ₯°πŸ€—
            when i can think of something profound i will update this.

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              Originally posted by matthew55 View Post
              Just say YES to being hugged.
              You're too scary to be hugging old ladies now - if my wheelchair could fit behind a curtain, that's where I'd be 😱😱😱😘😘

              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                It's the thought that counts πŸ˜‰πŸ˜‚πŸ€—πŸ˜xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  Only 100% pure warm cuddles and hugs available here. πŸ€—πŸ˜πŸ˜ŽπŸ˜xx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    Gratefully accepted πŸ€—πŸ€— - the warmer the better these days 😘😘
                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      Definitely getting to be cuddling weather. Luckily this flat is warm and the sun is out.

                      Looks like theres an oyster glut . Not that I'm into a lot of fishy stuff. Just thought I'd throw that in from local news. πŸ₯°πŸ˜˜πŸ˜‰
                      when i can think of something profound i will update this.

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                        Ugh oysters is like eating snot! Have a hug to take your mind off what I just said. πŸ˜‰πŸ˜πŸ€—πŸ˜xx
                        ​​​​​
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          No I agree it's like tipping, awww, yeah exactly. Why did anyone think to do that?
                          when i can think of something profound i will update this.

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                            Originally posted by denise View Post
                            Looks like theres an oyster glut .
                            Yep, they're not being exported much these days...

                            But I have πŸ€—πŸ€—πŸ€—πŸ€—πŸ€— galore to export - tariff free, quota free and no paperwork required 😘😘
                            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                            ​

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                              I would spend eternity hugging you πŸ˜πŸ€—πŸ˜˜πŸ˜xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

                              Comment


                                Aww, thanks mate 😍😍😘
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

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