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    Heather R The finishing line is in sight Heather - it'll be sooo worth it. Hang in there hun πŸ€—πŸ€—πŸ€—πŸ˜˜
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      Big hugs to any others that survived the weekend. πŸ˜‰πŸ˜πŸ€—πŸ˜xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        πŸ€—
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          Monday hugs from to everyone πŸ€—πŸ€—πŸ€— and an extra one for Heather R πŸ€— Youre nearly there! X

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            Thanks for lovely hugs. I will hopefully be able to get into my house on Wednesday evening, fingers crossed. Xx
            Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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              Heather R Hope you have bought something new for the unveiling - posh bodywash, new towels or even a new toothbrush πŸ₯°

              🀞
              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
              Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

              ​

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                Yes good idea Ellie. I think it will need brightening up as tiles grey! Xx
                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                  Why is it 9am and no one hugging? 😳 I came here expecting a hug and theres no one here!!
                  when i can think of something profound i will update this.

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                    I'm here bad star.
                    ​​​​
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      Morning all....have a high fiveβœ‹from a wonky handπŸ˜‚πŸ˜œπŸ™„πŸ˜‰
                      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                        Very belated hugs all xx
                        Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                          Heather R It's never too late for a hug, thank you πŸ€—πŸ€—πŸ˜˜
                          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                          ​

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                            Hugs to all, especially Matthew xx
                            Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                              No Matthew here either 😳

                              Seems funny without Matthew 😫
                              when i can think of something profound i will update this.

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                                I'm bouncing back spraying hugs as I go. πŸ€—πŸ˜πŸ˜˜πŸ˜xx
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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