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    morning every one. where are you all? i going to have to do online shopping. i wish someone would do a virtual shopping thingy that would be great.
    anyway if anyone needs a hug i am here.
    xxxxxxxxxxx
    when i can think of something profound i will update this.

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      Volcanic hugs to one and all β™¨οΈπŸŒ¨οΈβ˜‚οΈπŸοΈxx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        denise I use Tesco online....very straightforward.

        Volcanic hugs might be needed matthew55 ....chilly!

        πŸ€—β„πŸ€—β„here's a virtual hug from me to allβ„πŸ€—β„πŸ€—β€‹β€‹β€‹β€‹β€‹β€‹β€‹

        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          A thermal lunchtime hug for one and all πŸ€—πŸ€—πŸ€—πŸ˜˜
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
          .
          ​

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            i usually use asda but had a Β£12 voucher from sainsburys. i use co-op if i need bread or milk but the guy turned up the other day and asked 'am i sober?' and my date of birth. well i had to laugh as i hadnt ordered drink though had ordered cigars for stephen. do i really need to tell them how old i am when i am obviously old enough for my pension never mind anything else.
            when i can think of something profound i will update this.

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              An extra special hug and cuddle, I'll bring the duvet and you bring the hot chocolate. 🍫πŸ”₯πŸ€—πŸ˜˜xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                Why are Christmas trees so bad at sewing?........ They're always dropping their needles. πŸ˜‚πŸ˜‚xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  A morning HUG to all πŸ€— stay warm & cozyπŸ€—
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                  Comment


                    Morning all and hugs back to everyone.

                    A chilly but lovely day up here so surprised to see snow in other parts of the country. All our ferries were cancelled yesterday, so when Mark went to the Coop, it was very bare with no deliveries able to get over. Don't expect we'll starve though. If we run out of hot chocolate, we've always got mulled wine for later πŸ₯΄πŸ€£πŸ€£

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                      Hugs to all. Do you live on an island Susie? X
                      Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                        Yes, I live on the Isle of Arran off the west coast of Scotland. There's a population of around 4,500. I'm the only MND here. My consultant is in Glasgow so tricky just now until I get my WAV.
                        Love living here though, feel very fortunate xx

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                          Guaranteed warm hugs available here. Come and get yourself hugged. πŸ€—πŸ˜πŸ’–πŸ˜œxx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            Hi everyone. Hugs here.
                            hospital tomorrow for peg change operation. Better go ahead this time.
                            Xxxx
                            when i can think of something profound i will update this.

                            Comment


                              Mmmm, that was a warming hug indeed matthew55 thank you 😘

                              Thermal hugs for everybody, whether you want one or not πŸ˜‰πŸ€—πŸ€—πŸ€—πŸ€—πŸ€—
                              ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                              Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                              .
                              ​

                              Comment


                                Thank you for the warming hugs πŸ€—πŸ€—πŸŒžπŸ”₯ Sending one to everyone from a very snowy Yorkshire. ❄❄⛄xx

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