Yes and warm hugs from South Yorkshire too. Susie I did visit Arran many years ago, beautiful place, lucky you x
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A very chilly π€.
Thoughts with so many ppl in the north without power this morningββββhope it's sorted soon.Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Warm hugs to all. So glad to have electricity at the moment, with my supply cut off twice in last few weeks but not now, and have been thinking of those further up north. xDiagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!
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Morning everyone, a late start for me today, normally can't wait to get out of bed as I'm normally so uncomfortable. Last night was the best night I've had in months. Didn't even want to get up so tea in bedπ
Didn't have snow or power cuts up here I'm pleased to say. Damp and 4.5 degrees today.
Warm hugs are always good though so sending them to one and all π€π€π€π€π€xx
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I guess at this hour I'm offering (almost) bedtime hugs π€π€π€π€
And tonight's bedtime story is... yep, you guessed correctly, Goldilocks and the π»π»π»
ππβDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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