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Hello there πŸ˜ƒ

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    Hello there πŸ˜ƒ

    This is for anyone who looks for a new post. I guess the weather is keeping people out today. πŸ˜ƒx

    #2
    Hello Matthew - I think you might be right - I had to go out myself earlier and the shops are busy - I think they are all out Christmas shopping and probably thinking the lockdown will go on past the December deadline........cant be bothered with it myself but then I was always a "Humbug"

    sue

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      #3
      I haven’t been out for weeks, other than for a drive. It’s been too cold and mostly rainy to even venture out to our tiny garden. Looking out the window next to my chair there are black clouds moving in and spoiling the lovely bright day that it has been thus far. I hope that all of those that are out shopping have a good and safe day. Lynne
      ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my ballance.
      I'm staying positive and taking each day as it comes.

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        #4
        I'm here. I couldn't think of anything exciting to say. πŸ˜‹

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          #5
          Hi Matthew...we went out to meet a new person for coffee today; it was her first time out in months. It was a nice treat, in anticipation of another long shutdown. I had also just started a new cycle of gym use at my hospice after missing it for 3 months (it closed, as everything did), once a week for 30 minutes of hand, arm and leg exercise...now that's also stopping again; so frustrating. Doing it on my own is possible, however being with another person in that caring place is very motivating and comforting...oh well, at least we can still leave the house for some form of exercise outdoors...my task will be to find another way to get motivated again. Best to you.
          K

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            #6
            I'd live to know what hand, arm and leg exercise you do. Stephen needs to do some physio but it's taking time to be arranged.

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              #7
              Did Gary say he's having his peg done this week?

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                #8
                Originally posted by denise View Post
                Did Gary say he's having his peg done this week?
                He did, denise . I'll put something in another thread.
                Each day is made easier with a bit of humour.

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                  #9
                  Hi Denise, I have a few hand/wrist exercises lifting small weights for 2 mins, repeating with each hand. Basically, lifting up from my side, extending forward from a sitting position, and also squeezing an exercise ball with fingers, that allows me some compression. i can't squeeze any normal exercisers any more, so the ball is still encouraging for some strength and flexibility. For legs, i have 1.5 kg ankle weights and practise several leg lifts, extensions and 'sit to stand' fo 2minute intervals.

                  I don't expect to build back strength but i do believe it has helped to maintain some flexibility. it also makes me feel useful in contributing to maintaining my current abilities, just by doing it regularly.

                  i follow these by spending 10 minutes on the treadmill. i believe it keeps my lung capacity healthy...who knows? But for now, I find it motivating and it also encourages me to do it more frequently at home.

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                    #10
                    [QUOTE=Kent R;n33429]i follow these by spending 10 minutes on the treadmill. i believe it keeps my lung capacity healthy...who knows? QUOTE]
                    Kent, have you heard of breath stacking? It can be done with or without an LVR bag (Lung Volume Recruitment)

                    You might not need to do it for secretion clearance but it's never too early to train your lungs to increase their efficiency!
                    This gives you an idea what breath stacking is (without the LVR bag), if you don't know: https://www.nlg.nhs.uk/content/uploa...1/IFP-0922.pdf

                    Love Ellie.

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      #11
                      There's a few videos on YouTube concerning breath stacking.
                      thanks Kent and Ellie I'm going to motivate Stephen again!

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                        #12
                        We've all gone very quiet πŸ˜‡

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                          #13
                          Spooky isn't it πŸ˜‰πŸ˜ƒx

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                            #14
                            Everyone is making last minute visits to friends and shops perhaps,
                            As long as there’s golf and beer I’m happy

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                              #15
                              No lockdown here. I just hope the uks will be worth it. 😐

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