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when i can think of something profound i will update this. -
Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user.
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Well I can never ever fold a fitted sheet. This could easily happen to me. It made me laugh. Putting a duvet cover on a duvet is also fraught with disaster. I'm just not made for housework 😆when i can think of something profound i will update this.Comment
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I kissed a nun once.
It's alright as long as you don't get into the habit...Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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Oh no! Naughty but I like it 😂when i can think of something profound i will update this.Comment
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🤣🤣🤣Foxes Never Quit 💙Comment
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I bought an alcoholic ginger beer.
He was furious...Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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🤭when i can think of something profound i will update this.Comment
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20220721_084330.jpg need more than domestos to get rid of this...when i can think of something profound i will update this.Comment
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Here’s a picture of me with REM…..That’s me in the corner.Foxes Never Quit 💙Comment
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I met this bloke with a didgeridoo and he was playing Dancing Queen on it…… I thought ‘that’s Abba-riginal’Foxes Never Quit 💙Comment
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I'm the ideal weight for someone who is 6 foot 5.
I'm not overweight, I'm undertall...Hi, I'm Eddie.
Started with wobbly left ankle in Nov 2020. Diagnosed 22 Oct 2021, confirmed by 2nd opinion 4 days later.
Full time powerchair user. Overnight NIV. PEG'ed but still eating. Voice banked but still talking.
Still wondering what the future will bring.Comment
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I'm too short for my weight. Medical staff dont get it when I tell them this. 😉when i can think of something profound i will update this.Comment
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