A Merry Christmas and bearable new year to all my friends old and new. This time last Christmas I was 'normal' but already this year is better by far. Go figure πx
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Hi matthew
merry Christmas to you. Let's hope things improve soon. At least we all have each other.
I tried to put my little Christmas tree earrings on this morning. Would they go on? Going to be another one of those days!
Lots of love and hugs Denise xxxwhen i can think of something profound i will update this.
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I want to wish you a very Merry Christmas, Matthew.
And I commend you for your Forum use, for your humour and easy-going nature, this place would be poorer without you π (and I mean that from the bottom of my heart π)
Any plans for the rest of the day?
Love Ellie.
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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I'm in the kitchen, surrounded by delicious food, and having my Nutrison pump feed π A downside to not living alone !
Am hopeful of having some chocolate fed to me later π€βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
β
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Originally posted by matthew55 View PostWell now the rest of the day is downhill..... only joking π I have an open bottle of champagne and salted caramel cream with some good movies. πx
Later I'm being taken to my sister-in-law's to spend the evening with her and her husband, her daughter and two children. It'll be like bedlam and I would much rather stay at home and watch a film. God preserve us from people who think they know how to make us happy.Each day is made easier with a bit of humour.
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Merry Christmas all and I hope that youβve all had a good day, even you GaryM. I hope that it turned out better than expected. Mathew I can picture you there surrounded by all of your treats and watching films, sounds great.
Weβve been home alone all day. A late breakfast started my day. Steve had been for his daily walk early on whilst I was still in bed. We had kippers and it takes me ages to eat these but itβs a tasty start to our day of indulgence. We shared a family Skype video call from 7.30 until 10pm. It was mostly fun seeing as we did a quiz but weβd had enough by 10. Others were still chatting. Weβre just sitting comfortably now, chilling before we start getting ready for bed. A quiet day tomorrow, might start a book that I got from my daughter.
Love to all, Lynne xxALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Hope you all had a good day yesterday. Gary you made me laugh I hope it went well. Lynne I would love to have shared your kippers. My son brought me 2 a year ago. I love them. Matthew's champagne sounded a nice choice I had a glass of ginja and I made cranberry sauce. It had cranberries in and ginja and looked like cranberry sauce π boxing day and I gather some might be doing the same today. We had a nice relaxed day and today will be the same.
it's very cold but a blue sky should get the temperature up a bit. βππwhen i can think of something profound i will update this.
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It was okay in the end, Lynne and Denise. I think I was just a bit stressed about the virus and the children who are normally a bit hyperactive. In normal times we'd see them at least once a week, but in this strange year I've only seen my sister-in-law a few times and not seen the children since March.Each day is made easier with a bit of humour.
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