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    Seasons Greetings

    A Merry Christmas and bearable new year to all my friends old and new. This time last Christmas I was 'normal' but already this year is better by far. Go figure 😁x
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Hi matthew
    merry Christmas to you. Let's hope things improve soon. At least we all have each other.
    I tried to put my little Christmas tree earrings on this morning. Would they go on? Going to be another one of those days!
    Lots of love and hugs Denise xxx

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      #3
      Merry Christmas. Whatever today, tomorrow and next year brings I wish you all a peaceful time

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        #4
        Merry Christmas to you and family πŸ’–πŸ’–πŸ’–

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          #5
          Merry Christmas everyone, have the best day you can.
          πŸŽ„
          Andy
          Sporadic MND/ALS - Limb onset - Diagnosed May 2016
          night time NIPPY, cough assist, PEG (not currently used)


          Today is the tomorrow I feared yesterday

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            #6
            I want to wish you a very Merry Christmas, Matthew.

            And I commend you for your Forum use, for your humour and easy-going nature, this place would be poorer without you 😘 (and I mean that from the bottom of my heart πŸ‘)

            Any plans for the rest of the day?

            Love Ellie.
            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

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              #7
              Well now the rest of the day is downhill..... only joking 😁 I have an open bottle of champagne and salted caramel cream with some good movies. 😁x
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                I'm in the kitchen, surrounded by delicious food, and having my Nutrison pump feed πŸ™„ A downside to not living alone !
                Am hopeful of having some chocolate fed to me later 🀞
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  #9
                  There's good and bad sides of everything, the trick is total focus on the good. πŸ˜πŸ‘x Chocolate yum yum
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #10
                    Originally posted by matthew55 View Post
                    Well now the rest of the day is downhill..... only joking 😁 I have an open bottle of champagne and salted caramel cream with some good movies. 😁x
                    Today, Matthew, I wish I was you. πŸ˜‰
                    Later I'm being taken to my sister-in-law's to spend the evening with her and her husband, her daughter and two children. It'll be like bedlam and I would much rather stay at home and watch a film. God preserve us from people who think they know how to make us happy.
                    Each day is made easier with a bit of humour.

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                      #11
                      Merry Christmas to you all and a special best wishes to Matthew as promised. Take it steady and enjoy your Christmas tv since you have total control of the remote.
                      I’m going to do this even if it kills me!

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                        #12
                        Merry Christmas all and I hope that you’ve all had a good day, even you GaryM. I hope that it turned out better than expected. Mathew I can picture you there surrounded by all of your treats and watching films, sounds great.

                        We’ve been home alone all day. A late breakfast started my day. Steve had been for his daily walk early on whilst I was still in bed. We had kippers and it takes me ages to eat these but it’s a tasty start to our day of indulgence. We shared a family Skype video call from 7.30 until 10pm. It was mostly fun seeing as we did a quiz but we’d had enough by 10. Others were still chatting. We’re just sitting comfortably now, chilling before we start getting ready for bed. A quiet day tomorrow, might start a book that I got from my daughter.

                        Love to all, Lynne xx
                        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                        I'm staying positive and taking each day as it comes.

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                          #13
                          Belated greetings to you all. Stay safe and keep smiling.
                          Richard
                          Richard

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                            #14
                            Hope you all had a good day yesterday. Gary you made me laugh I hope it went well. Lynne I would love to have shared your kippers. My son brought me 2 a year ago. I love them. Matthew's champagne sounded a nice choice I had a glass of ginja and I made cranberry sauce. It had cranberries in and ginja and looked like cranberry sauce πŸ˜• boxing day and I gather some might be doing the same today. We had a nice relaxed day and today will be the same.
                            it's very cold but a blue sky should get the temperature up a bit. β›„πŸŽ„πŸ˜š

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                              #15
                              It was okay in the end, Lynne and Denise. I think I was just a bit stressed about the virus and the children who are normally a bit hyperactive. In normal times we'd see them at least once a week, but in this strange year I've only seen my sister-in-law a few times and not seen the children since March.
                              Each day is made easier with a bit of humour.

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