Debbie, just a thought - I don't know how strong your arms are but if you're nervous about holding your precious grandson, get a baby sling and you can hog him for hours - I used to hold my niece like that. xx
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​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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Aw thank you Ellie, so kind of you to think of us.
I'd love to hog him for hours❤🙂 . Im still on an emotional high. My arms are okish. I wouldn't pick him up but I'd feel confident if he was given to me to hold. A sling is a great idea for the future though.
They're coming home today and they're adamant they want us straight round even if its just to peep through the window.
Thank you,
Love Debbie xComment
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That’s lovely Debbie. Congratulations to all of you, Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.Comment
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Congratulations
RichardRichardComment
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