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    #46
    Originally posted by Ellie View Post
    Nor do I, but I hope my children will have children and they'll learn all about me because I'll be long gone by then.
    Ellie you are already a leg end

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      #47
      I have grand children and maybe great great if I live long enough. πŸ˜‰
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        #48
        Originally posted by matthew55 View Post
        I have grand children and maybe great great if I live long enough. πŸ˜‰
        Do you manage to see them

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          #49
          Sadly not but that's a good thing for them. πŸ˜„
          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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            #50
            Originally posted by Ellie View Post
            I'm sure my grandchildren will be proud of me 😏
            Your grandchildren will be very proud of you Ellie ❀ x

            When I was diagnosed I said I wanted to live long enough to meet my first grandchild and see Leeds get promoted. Now I've done both I'm slightly worried ! I want to renage on the deal and make new goals 🀣x

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              #51
              Originally posted by matthew55 View Post
              Sadly not but that's a good thing for them. πŸ˜„
              That's such a shame, Matthew 😞 x

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                #52
                Being in the womb. Could not move so had a rest - came out breach.

                Then being left alone for the first time - very frightening.

                Being handed to my dad for first time - very frightening. Everything is a threat.

                Kicking off in the cot - so claustrophobic.

                Being on the potty when I couldn't poo and daddy was kissing mummy. Kicked off again, skricked my eyes out...
                Copyright Graham

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                  #53
                  Sadly most mistakes we make when young are forgotten, but some are with you for life. If I knew what I know now back then. πŸ˜‰
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #54
                    Originally posted by matthew55 View Post
                    Sadly most mistakes we make when young are forgotten, but some are with you for life. If I knew what I know now back then. πŸ˜‰
                    Too true

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                      #55
                      Originally posted by Deb View Post
                      When I was diagnosed I said I wanted to live long enough to meet my first grandchild and see Leeds get promoted. Now I've done both I'm slightly worried ! I want to renage on the deal and make new goals
                      You just set new goals, that's what I do all of the time.

                      And, as we all know that Leeds will never top the table πŸ˜‚, it will have to be when your grandson starts on solids, sits unaided, crawls, walks etc - do not be afraid to be ambitious πŸ€—

                      Love Ellie.
                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

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                        #56
                        Thanks Ellie.. such good advice to make new goals . I try to take one day at a time but it's good to have ambition too . ( like getting back to Spain with the family ! )

                        I'm not giving up on seeing Leeds top the table either ! πŸ™‚

                        Love and hugs to you,
                        Debbie x

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                          #57
                          Originally posted by Deb View Post
                          Thanks Ellie.. such good advice to make new goals . I try to take one day at a time but it's good to have ambition too . ( like getting back to Spain with the family ! )

                          I'm not giving up on seeing Leeds top the table either ! πŸ™‚

                          Love and hugs to you,
                          Debbie x
                          Great match to watch Debbie and fantastic result with only 10 men. X
                          I’m going to do this even if it kills me!

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                            #58
                            Originally posted by Barry52 View Post

                            Great match to watch Debbie and fantastic result with only 10 men. X

                            Glad you enjoyed it Barry. As I watched all the second half from behind a cushion I've had ro watch it all again ( and again !) X

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                              #59
                              My team are struggling to avoid relegation so I am delighted that Newcastle beat Burnley 2 - 1 this afternoon.
                              I’m going to do this even if it kills me!

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                                #60
                                I've been trying not to get covid at least until the end of May, when my daughter is due to give birth to her first child x
                                Diagnosed July 2020, ALS bulbar onset.

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