If like me you sit all day with half an ear open for notifications and none occur it leads to a very dark place. You can provide a light. Just say anything. Please.
Announcement
Collapse
No announcement yet.
Just respond
Collapse
X
-
Matthew, have you thought about contacting your nearest mnd branch to explain your circumstances. They will probably have come across similar situations.
Do they run on line support group sessions you could join. I think you use technology to speak for you so I’m sure they will work out something with you.
It could be there is someone else in the branch that would welcome having a typed chat because they too are lonely.
I’m joining my branch monthly session today. They have a guest speaker each month. I tend to just listen and learn.
Comment
-
Hi Mathew, my jar for sprouting alfalfa arrived about an hour ago (didn’t have a big jar in the flat) so we’ll start sprouting today if my reluctant husband Steve gets his act together. I’m looking forward to alfalfa sprouts in my diet again as it’ll give me some energy and a clear head. That’d be if it works in the same way for me as it did in the distant past.
I hope that you’ve had some good news today about carers. Please keep us up to date about this journey. Love and hugs, 🤗, Lynne xLast edited by Lynne K; 4 May 2021, 15:07.ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
Comment
-
OK, obviously lonliness is making a dire situation almost untenable for you Matthew, so if you can have even one visit per week by an Association Visitor (AV), which your local MNDA branch can organise, coupled with visits from mental health workers (you say you were offered in hospital) would provide some real life, human interaction, which you yearn.
I know it is not the ideal version of a social life but sometimes we all need to bite the bullet and go outside our comfort zones. You need more than a few nods and winks from Forum members and I don't in anyway underestimate their importance. Having carers come in is great company too, that they might wash your bits is incidental.
Self-sabbotage is an easy trap to fall into - I know this from personal experience - you have reached out for help Matthew, please accept what help is available, and I mean real human to human help to complement your forum use.
Love El xx.Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
- Likes 2
Comment
-
Originally posted by matthew55 View PostWhy is it that you criticize my posts? I thought you were my friendDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
Comment
Comment