I cant help wondering why we only see posts from very few. Should we be encouraging involvement, do we even know if they ever log in? Why join, then do nothing? Am I just too nosy for my own good? Probably
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Hi Evelyn,
I guess the forum is like life in that some people are more sociable than others. Of course we mustnβt forget that the ability to type is useful as well as the familiarity with technology. Many people look in for information and some only visit the site occasionally. Personally this forum gives me a connection to others going through common experiences be they pwmnd or carers and family members.Iβm going to do this even if it kills me!
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Originally posted by EvelynMW View PostI cant help wondering why we only see posts from very few. Should we be encouraging involvement, do we even know if they ever log in? Why join, then do nothing? Am I just too nosy for my own good? Probably
The forum is a public space and is set up to allow anyone to view posts without needing a user account. We know that a lot of users use the Forum as a source for information and don't wish to post.
As other members have said, everyone is different and the forum is here for everyone living with and affected by MND. This is reflected in our Forum Guidelines and Terms and Conditions.
Many thanks,
Forum Admin.Our working hours are Monday to Friday 8:30am until 5pm
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Hi Pat. I didnβt see your 9.15 post to say βgood morningβ etc until just now, Iβve been distracted today with the lovely sun outside our windows and me getting reading for my MND Clinic appt in Salford this afternoon, I get up between 5.45 and 7.15 (pain dependant). Iβll check in tomorrow morning. Iβm usually in the shower from 8,30βish so if after showering and dressing itβd be 10.30'ish as it takes me so long. Love Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Lynne K Trust i got the name right as no names are popping up as i type today - new glitch? I feel for you - 2 hours to get dressed? And there's me complaining about taking 5 to 10 minutes to put a bra on!??!!! LolLast edited by EvelynMW; 7 June 2021, 12:10. Reason: Sorry - my second try worked? Could not not see that till i posted!!!Mum died with MND in 1979 β My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.
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Yes Evelyn 2 hours to get showered and dressed. I can put most things on myself with massive effort, but Steve fastens my bras and sometimes puts my socks
and shoes on. I can do socks and shoes with massive effort but sometimes I donβt have the energy or inclination. Lynne xALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.
I'm staying positive and taking each day as it comes.
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Lynne K Just about to go out - hubby (Peter) will have to do my jewellery - i am assuming i will be able to do my shoes up! Which reminds me, must go get them from the summer show bag!Mum died with MND in 1979 β My sister and I have a wonky gene, probably inherited from mum. Reckon my MND started sometime in 2018.
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