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    Early Bird Club

    This is the formal formation of the Early Bird Club, henceforth to be known as the EBC. Membership is for anyone who rises from their pit at silly o'clock, or before 6am. You are never alone here. Stay Strong πŸ˜€πŸ‘πŸ˜πŸ˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

    #2
    Just syringed 60ml of black coffee and 30ml of Sodium PicoSulfate (The Water Maker) I want to try diamorphine so doing research with Liverpool Narcs on Now TV. πŸ˜‰πŸ˜πŸ€—πŸ˜˜xx
    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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      #3
      I was awake at 2, 3ish. Made hot chocolate and finally went back to sleep. I usually wake up about 6 and get up. First cuppa tea. Dull misty morning here. 😊
      when i can think of something profound i will update this.

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        #4
        No English tourists must be nice πŸ˜‰πŸ˜πŸ˜˜πŸ˜xx
        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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          #5
          We don't get a lot of tourists here. Did notice more foreign vehicles about. Now we are off the green list I don't know what will happen. Everyone thought this was the start of summer holidays abroad only to see it collapse. It's such a shame.
          when i can think of something profound i will update this.

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            #6
            Are there any subs? Groucho Marks said he wouldn't join any join any club which would accept him as a member.

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              #7
              Subs are posts and open membership πŸ˜€πŸ‘πŸ˜˜πŸ€—xx
              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                #8
                Originally posted by matthew55 View Post
                Membership is for anyone who rises from their pit at silly o'clock, or before 6am.
                I am usually awake before 6am, but out of my pit I cannot get... 😏
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Significant bulbar impairment - No functional limbs - No speech - Feeding tube - Overnight NIV - Eye gaze user
                .
                ​

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                  #9
                  No problems you may join πŸ‘πŸ˜πŸ˜€πŸ˜xx
                  Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                    #10
                    Good morning fellow EBCers. Another day has dawned, let's hope it shines on us all. πŸ€—πŸ˜πŸ˜πŸ˜˜xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      #11
                      Morning my little friends. Looks like another nice day here.

                      the motorbike rally is on at the moment. Last week car rally.

                      😎
                      when i can think of something profound i will update this.

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                        #12
                        I can’t join early morning club as don’t get up until 8.30-9.I wake early then usually had enough of the NIV so that gets removed and I snuggle down for a few more hours.

                        It’s beautiful sunshine again this morning.Yesterday evening treated us to The Red Arrows flying over as air show near by at Ragley Hall In Warwickshire.Sky was full of hot air balloons.
                        Getting showered and dressed with assistance seems to take ages unlike my working days when I jumped out of bed and could get going for the day in no time.

                        Today I need to find clothes that fit as lost a lot of weight, my sun hat and cream and await the newspaper to arrive before heading to the garden.No rush required.

                        Lets hope we all have a good day,
                        Best wishes
                        Mary

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                          #13
                          You can join our affiliate club the Later Waking Club. πŸ‘πŸ˜πŸ˜πŸ˜˜xx
                          Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                            #14
                            Please can I apply to join the late ⏰ waking club. πŸ’€ 😴 However awake i am in the night I am always comfortable for a morning snooze.

                            When I was working I would be out of the house for 7 30 ( often with toast in hand ) Now it takes me hours to be up showered and ready.

                            I have asked hubby to wake me earlier but he says I look too peaceful to disturb... I think its him that likes the peace.!

                            Love Debbie x

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                              #15
                              Deb You're in πŸ‘πŸ˜πŸ˜πŸ˜˜xx
                              Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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