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    Good morning all
    sorry I forgot this morning
    It's all funny

    Comment


      Originally posted by keno View Post
      sorry I forgot this morning
      Last night must have been bad, or good 😍😍😘😘
      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

      ​

      Comment


        G'day all - about to eat my lunch, feel like Homer Simpson with my slobbery anticipation 🀣🀣😘
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

        Comment


          Good morning all xx

          Comment


            Originally posted by Ellie View Post
            Last night must have been bad, or good 😍😍😘😘
            Good just forgot
            I was busy trying to sort things that
            It's all funny

            Comment


              Good morning all
              got to get showered and dressed but having a coffee first
              It's all funny

              Comment


                Morning...well we've made it to Thursday.

                Morning keno coffee is essential....showering can wait...πŸ‘πŸ»πŸ˜‰
                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                Comment


                  Originally posted by LindaB View Post
                  Morning...well we've made it to Thursday.

                  Morning keno coffee is essential....showering can wait...πŸ‘πŸ»πŸ˜‰
                  Managed both now
                  It's all funny

                  Comment


                    keno you'll need a rest now πŸ˜‰ or more coffee. Have a great day😁
                    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                    Comment


                      Good morning everyone. Thank goodness for a decent nights sleep, the first for a couple of weeks. Only one loo break in the night and no breathing panics yay!
                      Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                        Good morning all xx yes made it to another day. Glad you had a better night Rosemary6NT xx

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                          Yay Rosemary ! Hullo everyone. Today is exactly a year since I moved into this bungalow, and hopefully they will finish my adaptations today by completely taking up my bedroom floor and getting it level with the passageway. My friend who was going to sort the mess of insulation in the loft before adaptations but who put it off until now in case the adaptations interfered further, has been up and found that they have squashed the insulation down instead of putting aside, and have left bags of rubbish including drinking bottles of pee! Just because they thought they could get away with it presumably xx
                          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

                          Comment


                            My phone is losing what I write. Third try;

                            Morning all xx

                            I made the efforts to stay in bed up to 9 as felt really tired. Very unusual for me, woke as usual crack of dawn and several times later but fought it. Showered and dressed (mostly independently again) and sitting on my RR chair.

                            Keno I hope that you’ve enjoyed your coffee. Have a good day x

                            Yes Linda, Thursday here. OT coming this afternoon to explain hoisting to Steve xx

                            Rosemary, great that you had a good night sleep xx

                            Heather what animals you had in, disgusting. Good luck for it all getting sorted xx

                            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                            I'm staying positive and taking each day as it comes.

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                              Heather R terrible that workmen felt that was acceptable😑
                              Have you bought or have you been provided a bungalow? Getting adaptations completed should be straightforward however these threads show that's often not the case. Glad to hear you're getting there 😘
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                              Comment


                                Rosemary6NT a decent nights sleep makes a huge difference - hopefully the new normalπŸ˜‰πŸ˜˜
                                Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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