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    Morning from a foggy London area...

    ​​​​​​I'm having a day off from the shower....😜 too tiring ...a wash will do πŸ™‰πŸ™ˆπŸ™Š...hey it's Sunday πŸ˜‚
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      Shower fed and dressed at last
      The shower is such hard work I tend to do it every other day unless I am going somewhere
      It's all funny

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        keno every other day is fine...me too...I have to plan my day around conserving energy and prioritise tasks.
        Have a great Sunday...πŸ˜‰
        Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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          Morning from a foggy Yorkshire. I am exhausted after folding some washing and taking something out to garage. All getting a bit much for me! Xx
          Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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            Morning Linda, Keno, Heather and all from a bright morning in Radcliffe for a change.

            Showered, and dried (hard) independently then a
            little more help dressing than usual. Sat on RR chair watching rewound Andrew Marr. His last show for the BBC xx
            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

            I'm staying positive and taking each day as it comes.

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              Good day everyone. Have to admit - agree with Matt about xmas!

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                A lot of people hate Christmas xx
                Diagnosed July 2020, ALS bulbar onset. PEG and ventilator (mainly at night), and pretty poor speech, but legs still about functioning!

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                  Christmas can be a very difficult time for lots of people...particularly this last 2 years with so much loss caused by the pandemic.

                  ​​​​​​One of the best Christmas days I had was working at Crisis...put things into perspective πŸŽ…πŸ€Ά
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                    Morning everyone. No idea what the weather is like as it's still dark. πŸ˜‰
                    when i can think of something profound i will update this.

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                      Good morning all
                      Dressed so now for a coffee
                      It's all funny

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                        Morning Denise, Keno and all xx

                        I’m waiting for the bathroom for my shower xx
                        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                        I'm staying positive and taking each day as it comes.

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                          Originally posted by denise View Post
                          Morning everyone. No idea what the weather is like as it's still dark. πŸ˜‰
                          Looks like you haven't been sleeping well...not sure if you're an early bird or night owl😘
                          Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                            Good morning all xx

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                              Hi Linda. I'm just not sleeping. I do manage about 4 hours but it's not enough. I'm starting to feel like a zombie. I've started taking antihistamines and I'm hoping they will work. If they don't I don't think I will know when I'm awake or asleep.
                              when i can think of something profound i will update this.

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                                Good morning all
                                Shower dressed so now for food
                                It's all funny

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