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    keno you might feel better later & be able to eat some...fingers crossed.
    Keep hydrated with water....πŸ€—
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      I have to chemically induce diarrhoea to go number 2. It may be Christmas day but life rumbles along as usual. ☒️⚠️😫😁xx
      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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        keno Sorry to hear that Ken, you must be so disappointed πŸ˜₯

        Hopefully the bowels settle quickly.

        Extra love for you today πŸ€—πŸ€—πŸ˜˜πŸ˜˜
        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

        ​

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          Hopefully nobody was woken at 2am by Rudolph stomping on the roof to tell Santa to get a move on πŸ˜‰πŸ˜˜πŸ˜˜

          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

          Comment


            Originally posted by LindaB View Post
            keno you might feel better later & be able to eat some...fingers crossed.
            Keep hydrated with water....πŸ€—
            I don't feel ill at all and pretty certain it was the whole Morrisons sherry trifle i ate at home yesterday (too rich all in one go)
            Hate water with no coffee in it.
            I keep thinking this could be my last Christmas too.
            It's all funny

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              Originally posted by matthew55 View Post
              I have to chemically induce diarrhoea to go number 2. It may be Christmas day but life rumbles along as usual. ☒️⚠️😫😁xx
              Trifle seems to do it for me Matthew
              It's all funny

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                Enjoy everything while you can my friend

                ​​​​
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  Originally posted by keno View Post
                  I don't feel ill at all and pretty certain it was the whole Morrisons sherry trifle i ate at home yesterday (too rich all in one go)
                  Oh Ken, who'd have thought that your digestive system would react badly to eating a whole sherry trifle 🀭😍😍

                  Originally posted by keno View Post
                  I keep thinking this could be my last Christmas too.
                  I'm the same Ken. I have a cry every Christmas Day, thinking the same thing, then I scold myself and tell myself to enjoy today, after all, earth could be obliterated by a meteorite next month and it's everybody's last Christmas πŸ˜‰πŸ˜‚πŸ˜‚πŸ€—πŸ˜˜

                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

                  Comment


                    Good morning all
                    It's all funny

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                      Good morning anyone who is still breathing today. The dreaded day is past and normal days are coming up. Stay Strong for a little bit longer. We are here for you. πŸ’ͺπŸ˜πŸ™πŸ€—xx
                      Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                        Good morning everyone xx

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                          Good morning all.

                          How’s your stomach this morning Keno?

                          I showered and dried again independently (harder), and same help as yesterday to get dressed

                          I hope that you all have a good Boxing Day xx
                          ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                          I'm staying positive and taking each day as it comes.

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                            Morning all...have a good Boxing Day. Harry Potter scrabble with granddaughter after a late breakfast. πŸ‘πŸ€—
                            Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

                            Comment


                              Originally posted by Lynne K View Post
                              Good morning all.

                              How’s your stomach this morning Keno?

                              I showered and dried again independently (harder), and same help as yesterday to get dressed

                              I hope that you all have a good Boxing Day xx
                              Fine this morning thanks
                              had some porage first thing I ate in 24 hours
                              It's all funny

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                                keno that’s good Keno xx
                                ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                                I'm staying positive and taking each day as it comes.

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