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    keno So glad you're feeling human today πŸ‘πŸ˜˜πŸ˜˜
    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

    ​

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      Hi everyone. Not a bad day yesterday but a pain trying to park near the house.
      I'm not sure how many versions of Mary Poppins I've watched but I think I've had enough. 🀣
      when i can think of something profound i will update this.

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        Originally posted by Ellie View Post
        keno So glad you're feeling human today πŸ‘πŸ˜˜πŸ˜˜
        Thank you
        my brother has been with a Christmas dinner and lots of presents
        It's all funny

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          Originally posted by LindaB View Post
          Harry Potter scrabble ...
          I definitely need an explanation for HP Scrabble LindaB 😏

          Words have to be HP related? πŸ€”

          How lovely that your grandaughter stayed over 😘😘
          ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
          Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

          ​

          Comment


            Originally posted by keno View Post
            my brother has been with a Christmas dinner and lots of presents
            Oh, how kind of him πŸ‘πŸ˜‡

            ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
            Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

            ​

            Comment


              Originally posted by Ellie View Post
              I definitely need an explanation for HP Scrabble LindaB 😏

              Words have to be HP related? πŸ€”

              How lovely that your grandaughter stayed over 😘😘
              You can use Harry Potter type magic words as well as usual words. There are also forfeit cards linked to certain squares. She's always been a HP fanπŸ’₯πŸ’₯😘
              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                LindaB Who won? xx
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

                Comment


                  Originally posted by Ellie View Post
                  LindaB Who won? xx
                  We've yet to play....keep doing other things 😏
                  I'm sure she will win when we doπŸ˜‰
                  Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                    Morning as broken
                    Hi all
                    It's all funny

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                      Morning isn't nice here. Wet and windy. Not encouraging to do anything.

                      😟
                      when i can think of something profound i will update this.

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                        Good morning my fellow storm chasers. The storm outside is nothing compared to the one we face inside ourselves every day but you don't have to do it on your own. Not while we are here to hold you. πŸ€—πŸ˜‰πŸ˜πŸ˜xx
                        Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                          Hello all xx

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                            Morning everyone, from bright Radcliffe xx
                            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                            I'm staying positive and taking each day as it comes.

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                              Morning all....have a good oneπŸ€—
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                                Afternoon pals 😘😘
                                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                                ​

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