keno So glad you're feeling human today πππ
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Originally posted by keno View Postmy brother has been with a Christmas dinner and lots of presents
βDiagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.
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You can use Harry Potter type magic words as well as usual words. There are also forfeit cards linked to certain squares. She's always been a HP fanπ₯π₯πInitial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.ββββββ
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Good morning my fellow storm chasers. The storm outside is nothing compared to the one we face inside ourselves every day but you don't have to do it on your own. Not while we are here to hold you. π€πππxxBulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong π€ππ€πxx
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