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    Heather R that's sounds brilliant...😘
    Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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      Originally posted by Lynne K View Post
      Good morning all. Only 3 hours sleep for me. Difficulty getting to sleep then up at 4 to try take more pills. Went to loo, did teeth and back to bed. Couldn’t get back to sleep I’ve got an appointment this afternoon at Fairfield to see foot person. I’ll be nackered. Lynne xx
      Sounds as though you are going through the mill at the moment Lynne, I hope things look up soon xx
      Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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        Rosemary6NT true thanks xx
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.

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          Good day all and special good day to you Lynne K. Hope today goes ok xx

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            Best foot forward Lynne K πŸ‘πŸ˜πŸ€—πŸ’‹xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              Thanks Gordan and Mathew xx
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

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                Ggg ooo ddd aaa yyy πŸ₯ΆπŸ₯ΆπŸ₯Ά

                So cold my teeth are chattering, oh wait... I talk with my eyes 😍😍

                Hopefully the boiler will be working later - I've my hopes pinned on A) man turning up at 5pm as promised and B) that it can be fixed on the spot
                ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                ​

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                  Originally posted by Heather R View Post
                  My sister-in-law has given me an electric rug to put over my legs when sitting, so cosy!
                  Ooh I like the sound of that Heather - thanks for the idea xx

                  ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                  Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                  ​

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                    I have one arriving tomorrow. πŸ”₯πŸ”₯😁😍xx
                    Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                      Good morning all.
                      It's all funny

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                        Good morning, I hope everyone got a good nights sleep x
                        Diagnosed 18th May 2021 with sporadic ALS. Limb onset. Terrified of not being able to breathe easily.

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                          Morning peeps. Not a bad night but did have crumpets and coffee at 4.
                          chilly here but I did see the sun.
                          Xxx
                          when i can think of something profound i will update this.

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                            Good morning all. My night was a bit better than the last thanks Rosemary xx
                            ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

                            I'm staying positive and taking each day as it comes.

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                              Morning all...bright and chilly start. Keep safe πŸ™πŸ˜˜
                              Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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                                Good morning team mates. We stand together facing a deadly side that never looses. But our team has 5000 members and we are going to give them the game of our lives. A single twig is easy to break...... πŸ’ͺπŸ‘­πŸ‘«πŸ‘¬xx
                                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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