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    Good morning all
    It's all funny

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      Morning campers....it's a foggy start in the London area😘
      Initial diagnosis 7-4-2021 'suspected MND' confirmed by 2nd opinion 4th June 2021 ALS. Began with R foot limp and lots of falls. NIV overnight. Generally weak. Mostly terrified.​​​​​​

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        Good morning all from frosty Radcliffe xx
        ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

        I'm staying positive and taking each day as it comes.

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          Fed, poo'd, showered, changed, and knacked.
          Surprise myself sometimes

          It's all funny

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            Good morning all. Day two and at 0700 I couldn't stay lying down. Cares due at 0915. So, helped by a half full night bag, I got myself up and downstairs. The trick is to focus the mind so I watched Reservoir Dogs until my angels arrived. Now fully medded, pump attached and heating on I can face another day. The moral of the story is if there's no one to help you have a go yourself. You might just surprise yourself! πŸ˜‰πŸ˜πŸ˜œπŸ˜„xx
            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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              Originally posted by matthew55 View Post
              Good morning all. Day two and at 0700 I couldn't stay lying down. Cares due at 0915. So, helped by a half full night bag, I got myself up and downstairs. The trick is to focus the mind so I watched Reservoir Dogs until my angels arrived. Now fully medded, pump attached and heating on I can face another day. The moral of the story is if there's no one to help you have a go yourself. You might just surprise yourself! πŸ˜‰πŸ˜πŸ˜œπŸ˜„xx
              Sounds good Mathew.

              As Steve was starting to shower me yesterday a call came from the local dietitian that we’d been waiting for. He went to answer it and was ages so I finished the shower and rinsed myself then went to the loo, grabbed my towel from the rail and dried myself as best that I could. Steve came back in and finished the job. He was impressed about what I’d been able to do. Xx
              ALS diagnosed November 2017, limb onset. For the 4 yrs previously I was losing my balance.

              I'm staying positive and taking each day as it comes.

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                Until you try you'll never know. Go girl, you rock! πŸ‘πŸ’ͺ🌟😁xx
                Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                  Good day all my mnd family xx

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                    Originally posted by matthew55 View Post
                    The moral of the story is if there's no one to help you have a go yourself.
                    Yeah mate, I would but I'm a quadriplegic... 😏

                    ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                    Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                    ​

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                      Originally posted by LindaB View Post

                      Are the family still off galivantingπŸ‚
                      Yup, even the 🐢 is on her holidays.

                      Madness resumes tomorrow πŸ‘πŸ‘ 😘😘

                      ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                      Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                      ​

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                        Good evening peeps 😘😘
                        ​Diagnosed 03/2007. Sporadic Definite ALS/MND Spinal (hand) Onset.
                        Eye gaze user - No functional limbs - No speech - Feeding tube - Overnight NIV.

                        ​

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                          Originally posted by Ellie View Post
                          Yup, even the 🐢 is on her holidays.

                          Madness resumes tomorrow πŸ‘πŸ‘ 😘😘
                          Oo I bet you can't wait to see them @Ellie.πŸ’•
                          Happy Saturday evening to everyone xxπŸ˜˜πŸ€—

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                            There we all go Ellie, I was targeting newbies πŸ˜‰πŸ‘πŸ˜œπŸ˜xx
                            Bulbar started Jan 2020. Mute and 100% tube fed but mobile and undefeated. Stay Strong πŸ€—πŸ˜˜πŸ€—πŸ˜xx

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                              Morning everyone. I'm awake but think it's a bit early to get up. πŸ˜‰
                              when i can think of something profound i will update this.

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                                Good morning all
                                It's all funny

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